Out of Breath a Memoir: Sean Henderson and His True Adventures with Proteus Syndrome Volume 1

This chronicles my son Sean's journey with an extremely rare disease, Proteus Syndrome. Diagnosed at age 8, he was treated at the National Institutes of Health in Bethesda, Maryland for 9 years until his death at age 16 in 2002. The book was written from 9 years of journal writing. Sean's personality eclipsed his illness with such unwavering faith, a wicked sense of humor, his love of animals, and his intellect. Sean led a very big life and had great adventures. From driving a race car to meeting the Grateful Deadand going to Lourdes he was an inspiration to those who knew him.

A propos de l'auteur

I was an Executive Chef for 32 years. Retired now, I'm a mosaic artist and I'm writing my first book of fiction.

Détails du produit

• Auteurs: Lindsey Henderson Preece
• Edition: Neil Investments Inc
• Langues: Anglais
• Format d'édition: Livre de poche
• Sortie: 31.07.2019
• EAN: 9781543972917
• ISBN: 978-1-5439-7291-7
• Pages: 160
• Dimensions: 155 mm x 229 mm x 10 mm
• Poids: 227 g
• Catégories: Littérature spécialisée > Nature, technique > Biographies, autobiographies; Sciences naturelles, médecine, informatique, technique > Médecine > Général