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Zusatztext Extreme Caregiving is a foray into the moral hazard imposed by well-meaning clinicians on patients and their families, written by a pediatrician with a rare and singular vision. Generous, compassionate, yet unsparing, Freitag unfolds a humanistic portrayal of special needs children and their families; how they are disappeared in the medical narrative of specialist consultants and the vagaries of social services systems. She delivers this with the clarity and grace of a writer with the uncommon gift of soul and story. Informationen zum Autor Lisa C. Freitag practiced as a pediatrician for over twenty-five years, before returning to school to pursue an interest in the families of children with special needs. She received a Masters degree in Bioethics from the University of Minnesota Center for Bioethics in 2013. She continues to work in clinical ethics and explore the intersection between medicine and caregiving. Klappentext This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. It presents parents as moral individuals struggling to find their own way through relatively unexplored territory, in order to provide for their child the best life possible. Zusammenfassung This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. It presents parents as moral individuals struggling to find their own way through relatively unexplored territory, in order to provide for their child the best life possible. Inhaltsverzeichnis Preface Chapter 1 - Introduction Chapter 2 - Defining Extreme Caregiving Chapter 3 - Hard Labor Chapter 4 - Narrative and the Phases of Care Chapter 5 - Attentiveness/Responsibility: The Invisible Work of Care Chapter 6 - Competence Chapter 7 - Responsiveness Chapter 8 - Holding the Future Chapter 9 - Conclusion: Caring With References ...
