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This book uses an intersectional theoretical framework to explore LGBTQI cancer, survivorship, and care, and engages with a unique psychosocial approach.
Given the increasing recognition of LGBTQI communities as an underserved population in cancer care, and the need to provide tailored and culturally-sensitive care to these communities, this book is a timely and comprehensive guide for those wishing to understand LGBTQI patient and caregiver experiences and concerns and how these may be addressed in cancer care. The research on which the book is based addresses key limitations of the literature to date, including a lack of research on trans, intersex, adolescent and young adult, and carer experiences, and an overwhelming focus on breast and prostate cancers. The authors aim to identify and understand the complex intersection of gender, sexual identity, age, and other categories of difference, in relation to the cancer survivorship and care experiences of LGBTQI individuals, across a range of sexual identities, cancer types, and age groups. They ascertain barriers and facilitators to the delivery of culturally competent cancer communication and care to LGBTQI patients through an audit of guidelines and resources, and via the perspective of service providers. And finally, they aim to Synthesise and implement these findings into recommendations for tailored support materials for LGBTQI survivors and carers, and LGBTQI cancer best practice and policy recommendations.
This is a valuable resource for LGBTQI researchers in Psychology, Queer theory, Social Sciences, Medicine, Health Sciences, Social Work, Gender Studies, Oncology. It will be of interest to researchers and clinicians, and LGBTQI people with cancer.
Sommario
Contributors
Acknowledgements
1 Introduction: LGBTIQ+ People are an Invisible Diversity in Cancer Care
Jane M. Ussher, Rosalie Power, Kimberley Allison, Janette Perz
2 "Surviving discrimination by pulling together": LGBTIQ+ cancer patient and carer experiences of minority stress and social support.
Rosalie Power, Jane M. Ussher, Janette Perz
, Kimberley Allison, Alexandra Hawkey, and the
Out with Cancer Study Team.
3 Re-imagining Queer Embodiment: Challenges to Sexuality and Intimacy after Cancer
Jane M. Ussher, Sam Sperring, Amanda Denes, Rosalie Power, Janette Perz, Samantha Ryan, Chloe Parton, Gary W. Dowsett, Colin Ellis, Kimberley Allison
4 "Oh my god, I'm going to wet myself", Gay and bisexual men negotiate incontinence during cancer
Colin Ellis, Jane M. Ussher, Rosalie Power, Alexandra Hawkey
5 Addressing the Fertility Concerns of LGBTIQ+ People with Cancer: A Reproductive Justice Perspective
Alexandra Hawkey, Jane M. Ussher, Rosalie Power, Janette Perz
6 The Queer Temporality of Chronic Illness
Sam Sperring, Jane M. Ussher, Rosalie Power, Alexandra Hawkey
7 Gender Euphoria or Disruption of Gender Affirmation: Cancer Impact on Transgender Embodiment and Identity
Jane M. Ussher, Rosalie Power, Kimberley Allison, Janette Perz, Chloe Parton, Colin Ellis, Teddy Cook
8 A Human Right Violation: Medical Regulation of Intersex Bodies to Reduce Poorly Evidenced Risks of Cancer
Jane M. Ussher, Morgan Carpenter, Rosalie Powe, Samantha Ryan, Bonnie Hart, Janette Perz, Alexandra Hawkey
9 Developing Identities in the Context of Cancer: LGBTIQ+ Adolescents and Young Adults (AYAs)
Kimberley Allison, Jane M. Ussher, Janette Perz, Rosalie Power, Samantha Ryan, Fiona McDonald, Kerry H. Robinson, Cristyn Davies
10 Pushed to the Sidelines: LGBTIQ+ Cancer Carers
Kimberley Allison, Jane M. Ussher, Janette Perz, Rosalie Power
11 Being Out with Cancer: LGBTIQ+ Disclosure and the Impact on Cancer Care and Satisfaction
Rosalie Power, Jane M. Ussher, Kimberley Allison, Alexandra Hawkey, Janette Perz
12 Egalitarian, Inclusive, or Hostile? Healthcare Professional Perspectives on LGBTIQ+ People with Cancer
Jane M. Ussher, Rosalie Power, Janette Perz, Alexandra Hawkey, Kimberley Allison
13 What Patients Want: Recommendations for Policy and Practice in LGBTIQ+ Cancer Care
Rosalie Power, Jane M. Ussher, Alexandra Hawkey, Janette Perz, Samantha Ryan, Jenni Bruce
Index
Info autore
Jane M. Ussher is Professor of Women's Health Psychology at the Translational Health Research Institute, Western Sydney University, Australia. A critical health psychologist with 35 years of experience, her research focuses on sexual and reproductive health and embodied subjectivity. She is the editor of the journal
Women's Reproductive Health and the Routledge
Women and Psychology book series.
Janette Perz is a Professor of Health Psychology and Director of the Translational Health Research Institute at Western Sydney University, Australia. She has over 30 years of experience researching reproductive and sexual health, with a focus on gendered experiences, subjectivity and identity.
Rosalie Power is a Research Fellow in the Translational Health Research Institute, Western Sydney University, Australia. She is a NHMRC Emerging leader and a co-author of a series of publications on LGBTIQ+ cancer survivorship and care, as a member of the
Out with Cancer Study team.
Kimberley Allison is a Research Fellow at the Translational Health Research Institute, Western Sydney University, Australia. She is a co-author of a series of publications on LGBTIQ+ cancer survivorship and care, as part of the
Out with Cancer Study team.
