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If you know ten women, then you know endometriosis. At least one of them has it. Endometriosis is a chronic, progressive, full body disease where cells similar to the lining of the womb are found elsewhere in the body. It can cause debilitating pain, infertility, crippling mental health distress and, in some cases, even organ failure. Although it is as common as asthma or diabetes, endometriosis is barely covered in medical schools, leaving sufferers repeatedly dismissed, even mocked, when trying to access medical care. Rooted in historical context, and packed with up-to-date scientific knowledge and material from interviews with health professionals including Dr Louise Newson, Professor Andrew Horne, Dr Nighat Arif and Dame Lesley Regan, this book aims to be a lifeline with compassion at its heart, and a beacon of hope among a sea of misinformation and loneliness that endometriosis brings to sufferers. Aimed at anyone whose life is debilitated through illness, but also loved ones who want to support and understand a sufferer, this book is your guide to advocating for your health. It is everything that I wish I had when I fought to be believed for over 20 years.
Sommario
Introduction
1. What is endometriosis?
2. Dealing with the system - how to get help
3. Understanding endometriosis care and surgery
4. The evil step-sisters - associated conditions
5. Living with endometriosis - the art and the science
6. Not all endometriosis pain is physical
7. Endometriosis doesn't discriminate - why do we?
8. This is not the end
Appendices
References
Resources
Acknowledgements
Index
Info autore
Jen Moore is a highly respected educator, speaker and campaigner specialising in endometriosis and adenomyosis. The co-founder of The Endometriosis Action Alliance, she also consults for organisations such as the NHS, sits on the All Party Parliamentary Group for endometriosis, and is committed to overhauling clinical education at medical schools. Through her work she has amplified the voices of thousands of endometriosis sufferers and promoted change at an institutional level. @jen.dometriosis
