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Informationen zum Autor Melanie Ann Apel began writing about CF in 1995 and has since published more than 40 non-fiction books for children and young adults. She worked as a pediatric respiratory therapist at Children's Memorial Hospital in Chicago for six years. Klappentext The day-to-day dealings of life as a cystic fibrosis patient are described through a series of flashbacks to a time when the author was an 18-year-old volunteer at cystic fibrosis overnight camp. From diagnosis to death, this book leaves no aspect of CF untold as it includes a description of the illness; a comprehensive discussion of who gets the disease and why; an explanation of the procedures involved in diagnosing the disease; coverage of the arduous daily therapies involved in maintaining the life of a person with cystic fibrosis; and, now that people who have CF are living longer because of available therapies, the new challenges of dealing with CF-related diabetes as well as making decisions regarding lung transplants are all covered. Zusammenfassung The day-to-day dealings of life as a cystic fibrosis patient are described through a series of flashbacks to a time when the author was an 18-year-old volunteer at cystic fibrosis overnight camp. From diagnosis to death! this book describes all the aspects of CF. Inhaltsverzeichnis Part 1 Medical Disclaimer Part 2 Acknowledgments Part 3 Introduction Chapter 4 1. Cystic Fibrosis: The Facts Chapter 5 2. A Genetic Disorder Chapter 6 3. A Diagnosis Chapter 7 4. A Daily Challenge Chapter 8 5. Good Days and Bad Days Chapter 9 6. Living and Laughing Chapter 10 7. Other Complications Chapter 11 8. A Second Chance: The Lung Transplant Chapter 12 9. In the End Chapter 13 10. Just over the Horizon Part 14 Afterword Part 15 The Fabulous List of CF Resources Part 16 Glossary Part 17 Glossary of CF Meds Part 18 Bibliography Part 19 Index Part 20 About the Author
