Ulteriori informazioni
End-of-Life Care: Bridging Disability and Aging with Person Centered Care features two primary papers on the controversial issue of end-of-life care within the disabled and aging populations. Each paper explainsclearly and honestlythe multitude of issues involved in using person centered care. The first is from a father and nationally known advocate for the disabledRud Turnbullspeaking from a disability perspective about his disabled son. The second is from respected theologian M. J. Iozzio speaking from the aging perspective about her father's Alzheimer's disease. Responses from experts in the field follow, thoughtfully raising further points to consider about policies, ethics, quality of life, and consent.
Sommario
- Preface: End of Life, Religion, Disability, and Health: Where All the Paths Converge
- What Should We Do for Jay? The Edges of Life and Cognitive Disability (H. Rutherford Turnbull, III)
- RESPONSES TO WHAT SHOULD WE DO FOR JAY?
- What Should We Do for Everyone? Response to What Should We Do for Jay? (Angela King)
- The Challenges of Living and Dying Well: Responses to What Should We Do for Jay (Genevieve Pugh)
- Euthanasia and Disability: Comments on What We Should Do for Jay? (Hans S. Reinders)
- The Writing on the Wall. Alzheimer Disease. A Daughter's Look at Mom's Faithful Care of Dad (M. J. Iozzio)
- RESPONSES TO THE WRITING ON THE WALL
- Theological, Personal, Universal: Responses to The Writing on the Wall (H. Rutherford Turnbull III)
- The Writing on the Wall: Resources for Further Reflections (Stanley Hauerwas)
- Person Centered Planning and Communication of End-of-Life Wishes with People Who Have Developmental Disabilities (Leigh Ann Kingsbury)
- THE LAST PASSAGES PROJECT RESOURCES
- End-of-Life Care for People with Developmental Disabilities: Philosophy and Recommendations
- End-of-Life Care for People with Developmental Disabilities: Bibliography
- SPIRITUAL ENCOUNTERS
- Our Last Months with Amber: An Email Reflection (David Wetherow)
- Former Columnist's Final Words Inspire (Susan Harrison Wolffis)
- Index
- Reference Notes Included
Info autore
William C. Gaventa, David L. Couleter
Riassunto
Features two papers on the controversial issue of end-of-life care within the disabled and aging populations. These two central papers focus on person centred, interdependent care using the personal reflections of two close family members and their views about end-of-life care.
