Health Research Practices in a Digital Context

The current "generalized digitization" of society is influencing the health environment, healthcare organizations as well as actors. In this context, human and social sciences deconstruct, nuance and sometimes even challenge certain preconceived ideas and/or dominant discourses. In this book, researchers of four nationalities and three different disciplines have agreed to open the "black box" of their work. They display their scientific practices from the perspective of epistemology, ethics and methodology. They present and analyze their values and postulates but, also, what may have influenced the project, the definition of the object and objectives, as well as their approaches. In a contextual way, the first part presents some changes in environments and infocommunicational practices related to digital health. The second part opens space to reflect on ethics and deontology. Finally, postulating that scientific fact is not an essence but the result of a process, the last part discusses the methods implemented, which may be different from those initially envisaged. This book is dedicated to the researchers and postgraduate students in the human and social sciences as well as the health practitioners likely to collaborate with them.

Sommario

Foreword xi
 
Introduction xiii
Laurent MORILLON
 
Part 1. Changes in Contexts and Info-communication Practices Related to the Digital Environment in the Health Field 1
 
Chapter 1. Health and Digital Technology: Reflexive Feedback on Some Works 3
Hélène ROMEYER
 
1.1. Introduction 3
 
1.2. Voluntary changes over the last 50 years 4
 
1.2.1. An old but partial political desire 5
 
1.2.2. Coexistence of two types of information: medical and health information 7
 
1.3. Significant issues 9
 
1.3.1. Economic and professional issues 9
 
1.3.2. A plethora of information 11
 
1.3.3. Attempts to control 13
 
1.4. New uses 14
 
1.4.1. Continued confidence in physicians 15
 
1.4.2. Beyond information: life stories and testimonies 16
 
1.5. Conclusion 19
 
1.6. References 19
 
Chapter 2. Social and Digital Resources: The Hindered Information Practices of Cancer Patients 23
Adrien DEFOSSEZ
 
2.1. Introduction 23
 
2.2. Patients and information 24
 
2.3. Getting information from family and friends when suffering from cancer 26
 
2.3.1. Which relatives are likely to provide what kind of information? 26
 
2.3.2. Difficulty in asking people around you for information 28
 
2.4. Getting information on the Internet when you are sick with cancer 30
 
2.4.1. Widespread use for limited benefits 30
 
2.4.2. The health Internet: a misleading exposure 33
 
2.5. Conclusion 34
 
2.6. References 35
 
Chapter 3. Health at the In-between of Computing and the Information and Communication Sciences 39
Philippe MARRAST
 
3.1. Introduction 39
 
3.2. The hospital, a field to observe 41
 
3.3. An abductive and iterative approach for an "in-between" positioning 44
 
3.4. A theoretical diversity to characterize complex organizations 47
 
3.5. Conclusion 49
 
3.6. References 50
 
Chapter 4. Mental Health and Support for Disaster Victims. Info-communication Devices for Training Volunteer First-aid Workers in a Digital Environment 55
Silvia Rosa SIGALES RUIZ, Erik DE SOIR, Claudia Veronica MARQUEZ GONZALEZ and Michèle CARIA
 
4.1. Introduction 55
 
4.2. Studying manuals to train volunteer rescue workers in psycho-emotional support for disaster victims 56
 
4.3. Four analysis guides 57
 
4.3.1. Metadata for online documents 58
 
4.3.2. Pedagogical engineering of online textbooks 59
 
4.3.3. Mental health intervention protocols 61
 
4.3.4. Disaster management protocols 64
 
4.4. An info-communication device for online training in disaster response 66
 
4.5. Conclusion 68
 
4.6. Appendix 69
 
4.7. References 70
 
Part 2. Thinking about the Ethics of Health Research in a Digital Context 75
 
Chapter 5. Ethical Positions Arising from Research on Online Communities in the Health Sector 77
Aurélie POURREZ, Elodie CRESPEL, Stéphane DJAHANCHAHI, Olivier GALIBERT and Benoît CORDELIER
 
5.1. Introduction 77
 
5.2. Epistemology, deontology and ethical reflection 79
 
5.2.1. From the necessary scientific reflexivity to empirical and methodological scientific ethics 79
 
5.2.2. ICS and methodological and empirical ethics related to the study of NICTs 80
 
5.2.3. Empirical and methodological ethics 82
 
5.3. Empirical and methodological ethics in ICS and digital health 84
 
5.3.1. Collecting authorizations and approvals 84
 
5.3.2. Concealing or revealing oneself as a "researcher-observer"? 85
 
5.3.3. Protecting respondents 87
 
5.3.4.

Info autore

Laurent Morillon is a Professor at the University of the French West Indies. He is a researcher at the LC2S (UMR 8053) laboratory and leads a group on organizational communication (https://org-co.fr). His work focuses on the epistemological practices and models of actors in an organization context.

Riassunto

The current "generalized digitization" of society is influencing the health environment, healthcare organizations as well as actors. In this context, human and social sciences deconstruct, nuance and sometimes even challenge certain preconceived ideas and/or dominant discourses. In this book, researchers of four nationalities and three different disciplines have agreed to open the "black box" of their work. They display their scientific practices from the perspective of epistemology, ethics and methodology. They present and analyze their values and postulates but, also, what may have influenced the project, the definition of the object and objectives, as well as their approaches. In a contextual way, the first part presents some changes in environments and infocommunicational practices related to digital health. The second part opens space to reflect on ethics and deontology. Finally, postulating that scientific fact is not an essence but the result of a process, the last part discusses the methods implemented, which may be different from those initially envisaged. This book is dedicated to the researchers and postgraduate students in the human and social sciences as well as the health practitioners likely to collaborate with them.

Dettagli sul prodotto

• Autori: Laurent Morillon
• Con la collaborazione di: Lauren Morillon (Editore), Laurent Morillon (Editore)
• Editore: Wiley & Sons
• Lingue: Inglese
• Formato: Copertina rigida
• Pubblicazione: 31.01.2021
• EAN: 9781786304384
• ISBN: 978-1-78630-438-4
• Pagine: 208
• Dimensioni: 159 mm x 245 mm x 17 mm
• Peso: 758 g
• Categorie: Scienze naturali, medicina, informatica, tecnica > Medicina; Biomedizinische Technik, Biomedical engineering, Biomedizintechnik, Spezialthemen Biomedizintechnik, Biomedical Engineering Special Topics, Medizininformatik u. biomedizinische Informationstechnologie, Medical Informatics & Biomedical Information Technology, Rechnergestütztes Bioengineering, Computational Bioengineering