Ulteriori informazioni
This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient's disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives.
Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process - youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study.
Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.
Sommario
Chapter 1. Introduction: Historical Perspectives, Current Priorities, and Health Care Transition Evidence and Measurement. -Chapter 2: The anatomical, hormonal and neuro-chemical changes that occur during brain development in adolescents and young adults.- Chapter 3: The relationships of adolescent behaviours to adolescent brain changes; and their relevance to the transition of adolescents and young adults with chronic illness and disability.- Chapter 4. Healthcare Transition from the AYASHCN's perspective.- Chapter 5: Health Care Transition from the Family Perspective.- Chapter 6. Healthcare Transition from the Pediatric Provider's Perspective.- Chapter 7: Healthcare Transition from the Adult Provider's Perspective Barriers to accepting AYASHCN in the practice.- Chapter 8: Healthcare Insurance Changes.- Chapter 9. Establishing the Administrative Structure and Support for a Healthcare Transition Program.- Chapter 10: Mobilizing Pediatric Providers.- Chapter 11: Developing a Transition Policy, Procedures or Guidelines.- Chapter 12: Establishing a Method to Monitor Transition Planning and Track Patient Outcomes Following Transfer.- Chapter 13: Incorporating Healthcare Transition Readiness Assessment.- Chapter 14. Employing Healthcare Transition Planning Tools.- Chapter 15. Understanding the Pediatric and Adult Healthcare System: Adapting to Change.- Chapter 16. Developing the Process for Transferring Care from Pediatric to Adult Providers.- Chapter 17. Preparing the Adult Practice to Accept AYA.- Chapter 18: Establishing a System for Ensuring Transfer Completion.- Chapter 19. Defining Successful Transition: Young Adult Perspective.- Chapter 20. Defining Successful Transition: Parent Perspective.- Chapter 21. Defining Successful Transition: Pediatric Provider Perspective.- Chapter 22. Defining Successful Transition: Adult Provider Perspective.- Chapter 23. Defining Successful Transition: Payer perspective.- Chapter 24 Financial Cost of Healthcare Transition.- Chapter 25. Payment for Health Care Transition Services.- Chapter 26: Healthcare Transition and the Medical Home.- Chapter 27. The Hospitalist's Perspective on Healthcare Transition.- Chapter 28. The International Perspective on Health care Transition.- Chapter 29: Expanding the Role of the Pharmacist.- Chapter 30: Legal Issues: Guardianship and supportive decision making.- Chapter 31. Transitioning Adolescents and Young Adults with Medical Complexity.- Chapter 32. Transitioning Youth with Cognitive and Intellectual Disabilities.- Chapter 33: Palliative Care in Adolescents and Young Adults with Special Healthcare Needs.- Chapter 34: Healthcare Transitions and Dental Care.- Chapter 35. A Successful Healthcare Transition Program in a Hospital Setting.- Chapter 36: Different Healthcare Transition Models.- Chapter 37: Conclusions.
Info autore
Constance M. Wiemann, PhD
Associate Professor, Director of Research
Section of Adolescent Medicine and Sports Medicine
Department of Pediatrics
Baylor College of Medicine
Texas Children’s Hospital
Houston, Texas
Albert C. Hergenroeder, MD
Professor, Chief of Adolescent Medicine
Section of Adolescent Medicine and Sports Medicine
Department of Pediatrics
Baylor College of Medicine
Texas Children’s Hospital
Houston, Texas
Riassunto
Health Care Transition planning program focus that can be adopted across diseases, disabilities and settings.
Voices of youth/young adults, caregivers, and both pediatric and adult providers are unique to this book and will help bring context to other transition resources.
Includes illustrative case examples.
