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Informationen zum Autor Alan R. Fleischman, M.D. is Professor of Clinical Pediatrics and Professor of Clinical Epidemiology and Population Health at the Albert Einstein College of Medicine in New York.In the academic area, he has been a pioneer in the fields of bioethics and research ethics. This work has resulted in over one hundred sixty publications in peer reviewed journals and book chapters, including a book edited with Robert Cassidy, entitled "Pediatric Ethics--From Principles to Practice," published by Harwood Press. In addition, Dr. Fleischman has been a consultant to several federal agencies including National Institutes of Health, Environmental Protection Agency, Food and Drug Administration, and Center for Disease Control and Prevention. He is an elected Fellow and a member of the Board of Directors of the Hastings Center and an elected Fellow of the New York Academy of Medicine. Klappentext This book examines the many ethical issues related to health care in children. It explores the moral obligations of families and clinicians facing hard choices for critically ill and dying children, ranging from neonates to adolescents. It also addresses the ethical concerns in research, genetic testing and screening, and surgical and medical enhancement. Zusammenfassung This book examines the many ethical issues related to health care in children. It explores the moral obligations of families and clinicians facing hard choices for critically ill and dying children, ranging from neonates to adolescents. It also addresses the ethical concerns in research, genetic testing and screening, and surgical and medical enhancement. Inhaltsverzeichnis Chapter 1 Children are Special: Hard Questions, Hard Choices Pediatric Ethics Moral and Legal Status of Children in America The Book Chapter 2 Ethical Issues in Creating a Child Religious Perspectives on Medical Assistance with Creating Babies Ethical Issues in In Vitro Fertilization Research in IVF Cost and Commercialization of IVF Clinician Choice of Patients for IVF Gamete Donation Gamete Storage and Disposition Embryos Preimplantation Genetic Diagnosis Gestational Surrogacy Final Thoughts Additional Readings Chapter 3 Ethical Issues in Giving Birth to a Baby Term Delivery Preterm Delivery The Threshold of Viability Late Preterm Delivery Do Not Resuscitate Orders in the Delivery Room Maternal Catastrophe and Brain Death Behaviors during Pregnancy that Jeopardize the Fetus Final Thoughts Additional Readings Chapter 4 Ethical Issues in Neonatal Intensive Care A Brief History of Decision Making for Critically Ill Neonates Infant Bioethics Committees Ethical Analysis in Neonatal Intensive Care The "Window of Opportunity " Is Neonatal Care "Experimental? " Cost and Neonatal Care Final Thoughts Additional Readings Chapter 5 Ethical Issues in Genetic Testing and Screening in Children Background Genetic Testing and Screening Genetic Exceptionalism Genetic Screening-Unique Issues in Children Screening for Adult-Onset Diseases Newborn Screening Newborn Screening - Use of Residual Blood Spots Newborn Screening - Future Directions Biobanking Biobank Institutional Review Boards Biobank-Informed Consent Biobank -- Revealing Research Findings Whole Genome or Exome Sequencing Final Thoughts Additional Readings Chapter 6 Ethical Issues at the End of Life: Caring for Gravely Ill Children Brain Death in Children Organ Donation after Circulatory Death Withholding vs Withdrawal of Treatment Medically Provided Nutrition and Hydration Pain Management at the End of Life Children as Participants in Planning Care Care of a Dying Child Supporting the Family after the Death of a Child Additional Readings Chapter 7 Ethical Issues in G...
