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This book examines the role of participants in research and how research ethics can be put into practice. Health, social, and journalistic research are currently subject to very different forms of regulation and codes of practice. By including the experiences of researchers and their subjects the book explores the disciplinary divides.
List of contents
Part One: Participation and inclusion: Strategies for living project; Service user led research: ethical considerations ~ Sarah Wright, Rachel Waters and Vicky Nicholls; Making the decision about enrolment in a randomised controlled trial ~ Tracey Stone; Ethical protection in research: participants' views: including children in the debate ~ Trudy Goodenough, Emma Williamson Julie Kent and Richard Ashcroft; 'An equal relationship?': people with learning difficulties getting involved in research ~ Beth Tarleton, Val Williams, Neil Palmer and Stacey Gramlich; Part Two: The review and governance process: Research with psychiatric patients: knowing their own minds? ~ Sarah Nelson; Researching end of life in old age: ethical challenges ~ Ailsa Cameron, Liz Lloyd, Naomi Kent and Pat Anderson; Part Three: Researchers' relationships with participants: Interviewing: the unspoken compact ~ Jean Rafferty; Using participative action research with war-affected populations: lessons from research in Northern Ireland and South Africa ~ Marie Smyth; Conducting longitudinal epidemiological research in children ~ John Henderson; Speaking truth to power: experiencing critical research ~ Phil Scraton; Domestic violence and research ethics ~ The Domestic Violence Research Group (DRVG), University of Bristol; Conclusion ~ Marie Smyth and Emma Williamson.
About the author
Marie Breen-Smyth is Professor Emerita and former Associate Dean at the University of Surrey. Emma Williamson is a Wellcome Trust Research Fellow currently working at the Centre for Ethics in Medicine, University of Bristol, UK.
Summary
This book examines the role of participants in research and how research ethics can be put into practice. Health, social, and journalistic research are currently subject to very different forms of regulation and codes of practice. By including the experiences of researchers and their subjects the book explores the disciplinary divides.
