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This book critically analyses the ongoing, often silent, expansion of genomics throughout society. Genomics has undeniably become an integral part of everyday life for many, albeit in ever-stratified ways, and this routinization process has come with interesting and often unpredicted consequences, interacting with national cultures, regulations, healthcare systems, patients, families, and more. Drawing from STS, anthropology, sociology, and political science, this volume explores multiple case studies across the globe, illustrating how genomics spreads, transforms, and is being transformed, ultimately becoming a routine, almost mundane, part of our daily life. The volume unpacks mundane genomics in five realms assisted reproduction, genetic predisposition and the clinic, direct-to-consumer testing and the making of identities, forensics, and genomics imaginaries presenting research that illuminates how genomics is
List of contents
1.Introduction.- 2.My genes, Your Genes: PGT-A in the Spanish Reproductive Bioeconomy.- 3.Driving a Ferrari on a country road, or when the technique becomes a gatekeeper. The case of preimplantation genetic testing in France.- 4.Promoting Genetic Testing to Prevent non-Genetic Conditions: PGT-A and Solving the Problem of Twins in US Fertility Clinics.- 5.Genetic testing in assisted reproduction treatments with donated gametes at the Spanish legislation.- 6.Cultivating Genetic Sensibility in Danish Lynch syndrome families.- 7.Cancer Risk Assessment Scores: Personalized Risk and Mundane.- 8.The Analyst, the Interpreter, and the Intruder: Genomics labor division and the textures of the Clinical Genetics specialty controversy in Spain.- 9. I Didn t Want to Buy More Tickets for that Lottery Metaphors for Genetic Testing in a Qualitative Study about Direct-to-Consumer Genetic Tests.- 10.Shallow time politics. Entangling ancestors qualities and present-day identities by way of genomic ancestry testing.- 11.What are we to each other? The limits of DNA in the search for origins in donor conception.- 12.The Daily Life of DNA: Forensic Genetics and the Administration of Death and Hope in Mexico.- 13.Infrastructures, power, and filiation: genetic information and the quest for the stolen babies of Spain.- 14.Forensic genetics and mass incarceration: widening the net of the DNA databases in Brazil.- 15.Mundane heroics a narrative analysis of gene therapy in the media.- 16.Pathways from Genomic Innovations: Navigating Equity and Access in Global Healthcare to Avoid Ableism.- 17.Storytelling, facts, and epigenetic sensibilities: from critique to speculation.- 18.The Mundane and the New Normal: Translating Microbiome Research to Tell Hong Kong s Story Well .- 19.Conclusion.
About the author
Violeta Argudo-Portal is a Serra Húnter Assistant Professor at the Department of Social Anthropology, University of Barcelona, Spain.
Vincenzo Pavone is a scholar in Science and Technology Studies, and the Director of the Institute for Public Good and Policies (IPP) within the Spanish National Research Council (CSIC), Spain.
Mauro Turrini is a sociologist of science and medicine at the Institute of Public Goods and Policies (IPP) within the Spanish National Research Council (CSIC), Spain, and associated researcher at the Centre for research on medicine, science, health, mental health, and society (CERMES3), France.
Ayo Wahlberg is Professor and Head of Department at the Department of Anthropology, University of Copenhagen, Denmark.
Summary
This book critically analyses the ongoing, often silent, expansion of genomics throughout society. Genomics has undeniably become an integral part of everyday life for many, albeit in ever-stratified ways, and this routinization process has come with interesting and often unpredicted consequences, interacting with national cultures, regulations, healthcare systems, patients, families, and more. Drawing from STS, anthropology, sociology, and political science, this volume explores multiple case studies across the globe, illustrating how genomics spreads, transforms, and is being transformed, ultimately becoming a routine, almost mundane, part of our daily life. The volume unpacks mundane genomics in five realms – assisted reproduction, genetic predisposition and the clinic, direct-to-consumer testing and the making of identities, forensics, and genomics imaginaries – presenting research that illuminates how genomics is no longer confined to the rhetoric of revolution, but increasingly operates within the contours of the everyday, with noteworthy implications for all the actors involved
