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Disfigurement: Understanding Visible Difference is a collection of essays which brings together an all-star cast of researchers, clinicians, advocates and activists around the world, many of whom have lived experience with disfigurement.
List of contents
ContentsDedication and AcknowledgementsContributor BiosIntroduction in Two PartsLise Deguire and Miriam JaffeSection 1: The Psychosocial Aspects of Body Image and IdentityChapter 1
Confronting Embodied Ableism: Learning from SynkinesisFaye Linda WachsChapter 2
Acid Violence and Disfigurement: Lived Experiences of Women SurvivorsBeenish Ambereen and Farhan Navid YousafChapter 3
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Those experiences while good also made me feel uncomfortable and broken": A Male's Perspective of Living with Facial Eye DisfigurementZali O'Dea and Jane SouthcottInterlude
Living Louder: Uncovering and Unlearning the Lessons of Rejection StoriesJasmine "Jaz" GrayPretty Disability: A Collection of Essays from a Black Girl who has Contemplated her Beauty and WorthRasheera D. DopsonSection 2: InterventionsChapter 4
Psychosocial Interventions to Support People Affected by Visible DifferencesDiana Harcourt, Maia Thornton, Pippa Tollow, Fabio Zucchelli and Alex ClarkeChapter 5
Visible Difference and Social Media: Harnessing a Unique Tool to Increase Support and Reduce StigmaElla Guest, Abbi Mathews, and Amy SlaterChapter 6
FaceIT@home: An Online Support Tool for Adults with Visible DifferencesAlyson NormanInterlude
Finding My VoiceDina ZuckerbergThe Swan FallacySora KasugaSection 3: Representations of DisfigurementChapter 7
Challenging Down Syndrome Prejudices in Today's Media LandscapeCharlene PellChapter 8
Facing up to *IT* is worth it; James Partridge RevisitedJ. Michael MurphyChapter 9
The Stories that Need to be ToldPhyllida Swift
About the author
Dr. Lise Deguire is a clinical psychologist, author, and burn survivor. After being severely burned as a four-year-old, she spent much of her childhood in the hospital, undergoing countless surgical procedures. Dr. Deguire is the author of the multiple award-winning book, Flashback Girl: Lessons on Resilience from a Burn Survivor. Dr. Deguire attended Tufts University, graduating summa cum laude, Phi Beta Kappa. She earned her doctorate in clinical psychology from Widener University and is in solo practice in New Jersey. Dr. Deguire has appeared on NPR, NBC, ABC, FOX, and Sirius XM. She is a TEDx speaker, a national keynote speaker and has presented for The American Psychological Association, the World Burn Congress, The Security and Exchange Commission, and The American Burn Association. She writes for Psychology Today, and has been featured in Huffington Post, Thrive Global and Tiny Buddha. Dr. Deguire blogs regularly about psychological resilience.
Miriam Jaffe, PhD (English), LSW, is Associate Teaching Professor in the Writing Program at Rutgers University and the lead editor of five collections on social justice issues (Routledge, 2016-2022). Her publications on narrative activism--from narrative medicine in literature to mental health and racial justice awareness in the social sciences--span fifteen years. She's worked as associate editor for the journal Writing and Pedagogy. She recently won Rutgers University's Beloved Community award. Miriam is also a psychotherapist specializing in trauma using EMDR and play.
