Oxford Textbook of Palliative Nursing

Palliative and hospice care is a specialty that is constantly evolving alongside the needs of its patients. Practitioners must navigate a rapidly growing field to best advocate for and deliver high quality primary and specialty palliative care to persons and families of those living with serious illness. This sixth edition of The Oxford Textbook of Palliative Nursing mirrors developments in Palliative Care, including several new chapters to support the delivery of palliative care to diverse populations. These chapters explore care for patients living with pulmonary, cardiac, liver, renal, and hematologic diseases, as well as chapters on health inequalities, LGBTQ+ communities, rural communities, and care of those with substance use disorders and serious mental illness. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatrics. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.

List of contents

• Acknowledgments


• Preface


• Betty R. Ferrell and Judith Paice


• Part I: General Principles


• Chapter 1: Introduction to Palliative Care


• Tara A. Albrecht, Heather Coats, and Vanessa Battista


• Chapter 2: Role of Nursing in Palliative Care


• Michelle Webb


• Chapter 3: Public Policy for Palliative Care


• Marian Grant


• Chapter 4: Principles of Patient and Family Assessment


• Shannon L. Storey


• Chapter 5: Palliative Nursing Communication


• Constance Dahlin and Janice Linton


• Chapter 6: Advance Care Planning


• Shigeko Izumi


• Chapter 7: Value Based Care


• Rory B. Farrand and Aparna Gupta


• Chapter 8: Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative Care


• Rebekah Malloy, Jessica Bullington, Catherine Rogers, and Adrienne Norquist


• Chapter 9: Enhancing Team Effectiveness


• Katrina Bezak and Kimberly Chow


• Chapter 10: Fatigue


• Edith O'Neil-Page, Grace E. Dean, and Paula R. Anderson


• Part II: Symptom Assessment and Management in Adult and Older Adult Populations


• Chapter 11: Pain Management


• Judith A. Paice and Martin Galligan


• Chapter 12: Dyspnoea and Cough


• DorAnne Donesky, Susie McDevitt, and Rebecca Disler


• Chapter 13: Anorexia and Cachexia


• Elizabeth E. Schack and Elizabeth Capano


• Chapter 14: Nausea and Vomiting


• David Collett


• Chapter 15: Dysphagia, Hiccups, and Other Oral Symptoms


• Rachel Klinedinst, Brenna McCarty, and Barton Bobb


• Chapter 16: Bowel Management: Constipation, Obstruction, Diarrhea, and Ascites


• Serena Snow and Cameron Jennings


• Chapter 17: Medically Administered Nutrition and Hydration


• Jennifer A. Tschanz and Carmen N. Spalding


• Chapter 18: Urinary Tract Disorders in Palliative Care


• Susan D. Bruce


• Chapter 19: Lymphedema Management


• Mei R. Fu, Charles P. Tilley, Rubén Martín Payo, and Catherine S. Finlayson


• Chapter 20: Palliative Wound, Ostomy, and Continence Care


• Charles P. Tilley, Kim Cavallito, Lindsay Alvarez, and Mei R. Fu


• Chapter 21: Pruritus, Fever, and Sweats


• Angel Smothers, Amanda Edwards, and Diana Niland


• Chapter 22: Neurological Disorders


• Lauren Massimo, and Brianna Morgan


• Chapter 23: Acute Delirium


• Shih-Yin Lin and Donna E. McCabe


• Chapter 24: Anxiety and Depression


• Katharine Adelstein and Elizabeth Archer-Nanda


• Chapter 25: Fatigue


• Stephanie Gilbertson-White and Nayung Youn


• Chapter 26: Insomnia


• Patricia Carter


• Chapter 27: Sedation for Refractory Symptoms


• Chandana Banerjee and Bonnie Freeman


• Part III: Psychosocial and Spiritual Care Across Lifespan


• Chapter 28: Cultural Considerations in Palliative Care


• Carrie L. Cormack and Aminah Fraser-Rahim


• Chapter 29: Supporting Families and Family Caregivers in Palliative Care


• Tamryn F. Gray and J. Nicholas Dionne-Odom


• Chapter 30: Hope and Meaning in Illness


• Anessa M. Foxwell and Darcy Alimenti


• Chapter 31: Sexuality and Sexual Function in Serious Illness


• Christina M. Wilson and Marloe V. Esch


• Chapter 32: Ethical Considerations in Palliative Care


• Phyllis B. Whitehead and Mark G. Swope


• Chapter 33: Addressing Spiritual, Religious, and Existential Needs in Palliative Care


• Elizabeth Johnston Taylor and William E. Rosa


• Part IV: Pediatric Palliative Care


• Chapter 34: Pediatric Pain


• Juliana H. O'Brien and Gina Santucci


• Chapter 35: Symptom Management in Pediatric Palliative Care


• Camara van Breemen and Nadine Lusney


• Chapter 36: Values and Perspectives Influencing Goals of Care and Decision Making in Pediatric Palliative Care: Leading through Uncertainty


• Christina McDaniel and Jordan M. Desai


• Chapter 37: Communication Components for Determining Goals of Care and Advance Care Planning in Pediatric Palliative Care


• Deborah Lafond and Kathy Perko


• Chapter 38: Ethical Considerations in Pediatric Palliative Care


• Hilary Carroll McGuire and Nicole Fernandez


• Chapter 39: Pediatric Spiritual Assessment and Care


• Dianne Richoux and Judy Zeringue


• Chapter 40: Palliative Care in the Perinatal Setting: Neonatal Intensive Care Unit, Labor and Delivery Unit


• Cheryl Ann Thaxton, Kathleen Ellis, and Andrea Biondi


• Chapter 41: Considerations for Adolescents in Pediatric Palliative Care


• Lauren Greco and Faith Kinnear


• Chapter 42: Pediatric Hospice Perspectives


• Alice Bass and Rebecca Turner


• Chapter 43: Nursing Care for the Pediatric Patient at the End-of-Life


• Jenna Freitas and Chelsea Heneghan


• Chapter 44: Grief and Bereavement in Perinatal and Pediatric Palliative Care


• Kathie Kobler, Rana Limbo, and Betty Davies


• Part V: Issues in Populations of the Seriously Ill


• Chapter 45: Pulmonary Palliative Care


• Patricia A. Maani-Fogelman and Jennifer Wescoe-Singley


• Chapter 46: Palliative Care in Heart Failure


• Rachel D. Wells, Avery C. Bechthold, Keith M. Swetz, and J. Nicholas Dionne-Odom


• Chapter 47: Palliative Care for People Living with HIV


• Jacquelyn Slomka


• Chapter 48: Palliative Approaches to Dementia Care


• Tatiana Sadak


• Chapter 49: Palliative Care for Persons with Liver Cirrhosis and Their Family Caregivers


• Louise Babikow, Christopher D. Woodrell, and Lissi Hansen


• Chapter 50: Palliative Care for Persons Living with End-Stage Kidney Disease


• Kate Sciacca and Marissa Finger


• Chapter 51: Palliative Care for Persons Living with a Hematologic Malignancy


• Ashley Leak Bryant, Lorinda A. Coombs, Samantha Mayo, Argin Malakian, and Tara Albrecht


• Chapter 52: Palliative Care for Persons Living with Cancer


• Denice R. Economou, Alissa A. Ulanday, and Eden R. Brauer


• Part VI: Care Near the End of Life


• Chapter 53: Urgent Syndromes at the End of Life


• Christina Feindt and Kelli Gershon


• Chapter 54: Sedation for Refractory Symptoms


• Sandra Perrotta


• Chapter 55: Withdrawal or Cessation of Life-Sustaining Therapies: Mechanical Ventilation, Hemodialysis, Cardiac Devices


• Margaret L. Campbell, Alvin H. Moss, and Sarah E. Schroeder


• Chapter 56: Palliative Care and Requests for Assistance in Dying


• Kaveri Roy and Sarah Rossmassler


• Chapter 57: Planning for Death


• Reiko Asano


• Chapter 58: Grief and Bereavement


• Inge Corless


• Part VII: Mode of Palliative Care Delivery


• Chapter 59: Hospice and Community-Based Palliative Care


• Karen Hyden, Maura Lipp, and Tammy Stokes


• Chapter 60: Telehealth, Telephonic Care, and Remote Patient Monitoring


• Laraine Ann Chiu, Jennifer Curtis, and Inez Brandon


• Chapter 61: Palliative Care Nursing in the Outpatient Setting


• Nancy A. Robertson and Ami K. Goodnough


• Chapter 62: Long-term Care


• Melissa McClean and Joan G. Carpenter


• Chapter 63: Palliative Care in the Emergency Department


• Rebecca Wright and Benjamin Roberts


• Chapter 64: Hospital-Based Palliative Care


• Barbara Reville and Anessa M. Foxwell


• Chapter 65: The Intensive Care Unit


• Jennifer L. McAdam, Céline Gélinas, and Kathleen Turner


• Part VIII: Considerations for Person and Family-Centered Palliative Care


• Chapter 66: Addressing Health Inequalities, Social Determinants of Health, and Underrepresented Individuals in Palliative Care


• Binu Koirala, Rebecca Wright, Patricia M. Davidson, Marlena C. Fisher, Katie E. Nelson, Benjamin Roberts, Danetta H. Sloan, and David S. Wu


• Chapter 67: Affirmative Palliative Care for LGBTQIA+ Patients and their Families


• Kailey E. Roberts, William E. Rosa, Noelle Marie Javier, Pierce DiMauro, Joshua C. Eyer, and Kristin G. Cloyes


• Chapter 68: Palliative Care in the Setting of Substance Use Disorder


• Peggy Compton, Yu-Ping Chang, and Salimah Meghani


• Chapter 69: Palliative Care in the Setting of Serious Mental Illness


• Lindsey C. Wright


• Chapter 70: Rural Palliative Care


• Richard A. Taylor, J. Nicholas Dionne-Odom, Erin R. Currie, Chunhong Xiao, and Marie A. Bakitas


• Chapter 71: Palliative Care for Older Adults


• Laura Moreines and Lauren Hunt


• Chapter 72: Global Palliative Care in Low- and Middle-Income Countries


• Virginia LeBaron, Thuý Ly Nguyên, and Usha Thapa


• Part IX: Special Considerations for Palliative Care Nurses


• Chapter 73: Occupational Stress, Burnout, and Self-Care in Palliative Nursing


• Erica Frechman and Patricia Wright


• Chapter 74: Palliative Care and Social Media


• Dana Hansen and Amy Petrinec


• Chapter 75: Career Advancement in Palliative Care


• Katherine Stackhouse


• Chapter 76: Nursing Education


• Andra Davis and Megan Lippe


• Chapter 77: Nursing Research


• Micah A. Skeens, Amy R. Newman, and Kathleen E. Montgomery


• Chapter 78: Developing and Implementing Quality Improvement Programs Across Settings


• Sean M. Reed

About the author

Tara A. Albrecht, PhD, ACNP-BC, ACHPN, RN, is a nurse practitioner, nurse scientist and the Specialty Director of Palliative Care at Duke University School of Nursing. Her program of research is focused on ameliorating symptoms and distress with the goal of improving to patient-reported health outcomes in adults with cancer and specifically those with hematologic malignancies. Her research also explores how the diagnosis of a cancer impacts the family. She works with an interdisciplinary team of scientists and clinicians with the shared goal of advancing symptom science to improve outcomes for adults living with cancer and their families.

Vanessa Battista, DNP, MBA, CPNP-PC, CHPPN, FPCN, FAAN, is a board-certified Pediatric Nurse Practitioner (PNP) and currently serves as Senior Nursing Director of Palliative Care at the Dana Farber Cancer Institute. She is responsible for clinical operations and practice of the inpatient and outpatient adult and pediatric palliative care nursing team.

Dr. Battista also works with an interprofessional leadership team to ensure the delivery of high-quality palliative care throughout the Institute with a focus on nursing education.She lectures and teaches at the local, national, and international level, and is a member of the ELNEC pediatric faculty.

Heather Coats, PhD, APRN-BC, FAAN, FPCN, is a palliative care nurse practitioner who many roles, including researcher, administrator, clinician, and educator. Currently, she is the Director of Research for Hospice and Palliative Nurses Association (HPNA) and an associate professor at the University of Colorado, College of Nursing, Anschutz Medical Campus, in Aurora, CO. With a well-founded based of palliative, oncology, and hospice care spanning over 28 years, her program of research investigates the use of person-centered narrative interventions to improve communication between patients, their identified care partners, and the clinicians who care for them. For this program of research, she has been funded by NIH and the Cambia Health Foundation.

She was the 2021 HPNA Vanguard recipient, is a Fellow in Palliative Care Nursing, and a Fellow of the American Academy of Nursing, and represents the Hospice and Palliative Nurses Association on the NASEM Roundtable on Quality Care for People with Serious Illness.

Abraham A. Brody, PhD, RN, FAAN, FPCN, is a palliative and geriatric nurse practitioner who has worked across settings to improve the quality of care and quality of life for seriously ill individuals. His research and implementation work centers on the intersection of geriatrics, palliative care, quality, and equity. This includes the development of interventions tailored for diverse and underserved older adults with serious illness and their caregivers that can be implemented in real-world conditions are tested for effectiveness in large multi-site clinical trials. His work leverages emerging technologies, including precision health and machine learning, to support the interdisciplinary healthcare workforce.

His work has led to the development of the Aliviado Health Program, which seeks to help care delivery organizations provide evidence-based geriatric palliative care to persons living with dementia and their caregivers, which has been disseminated throughout dozens of hospices, home care agencies, nurse-led telephonic care programs, case management, and other settings, impacting care of over 50,000 individuals.

Product details

• Authors: Tara A. (Associate Professor Albrecht, Specialty
• Assisted by: Tara A. Albrecht (Editor), Vanessa Battista (Editor), Abraham A. Brody (Editor), Heather Coats (Editor)
• Publisher: Oxford University Press
• Languages: English
• Product format: Hardback
• Released: 22.07.2025
• EAN: 9780197657461
• ISBN: 978-0-19-765746-1
• No. of pages: 856
• Series: Oxford Textbooks In Palliative Medicine
• Subjects: Natural sciences, medicine, IT, technology > Medicine > General; Nursing, MEDICAL / Nursing / General, Oncology, Palliative Medicine, MEDICAL / Oncology / General, MEDICAL / Pain Management