Read more
This book explores the psychosocial impacts of the kidney disease process and treatments on pediatric patients, including child development, schooling, coping, and resilience. Chronic illnesses and invasive treatments can be particularly impactful on children's development and identity formation, and a multidisciplinary treatment model that takes psychosocial considerations into account is imperative for patients' overall wellbeing. This book covers both specific disease-related concerns, including dialysis, transplantation, and nutrition, and broader issues such as collaborating with schools, supporting families, advocacy, and the transition to adult healthcare.
Written by experts in a rapidly developing area, this book is an excellent resource for all people impacted by and involved in caring for pediatric kidney diseases including practicing nephrologists and nephrologists in training, as well as psychosocial providers serving nephrology patients, and even families and patients themselves.
List of contents
1. Introduction: Understanding the Kid in Kidney Conditions.- 2. An Introduction to Chronic Kidney Disease.- 3. Exploring Medical Comorbidities: Kidney Disease in the Context of Other Diseases and Illnesses.- 4. End Stage Kidney Disease, Dialysis, and Transplant Basics.- 5. Nutrition and Growth Challenges.- 6. Coping with Medical Admissions.- 7. The Impact of Kidney Conditions on Neurocognitive Functioning in Children and Adolescents.- 8. Psychosocial Concerns and Quality of Life Considerations in Pediatric CKD.- 9. Pre-Transplant Evaluations and Evidence-based Education.- 10. Ethical Considerations in Collaborative Pediatric Kidney Care.- 11. Supporting Adherence and Self-Management.- 12. Healthcare Transition to Adult-focused Services with Chronic or End-stage Kidney Disease.- 13. Academic considerations and collaboration with schools in CKD.- 14. Supporting the Family System for Children with Kidney Disease.- 15. From the Patients' Vantage Point: Centering on the Patient/Family Perspective.- 16. The Important of Advocacy in Addressing Health Disparities in Pediatric Kidney Disease.
About the author
Anne E. Dawson, Ph.D.
Division of Pediatric Psychology and Neuropsychology
Nationwide Children’s Hospital
700 Children’s Drive
Columbus, OH 43206
USA
Kaushalendra Amaya, Ph.D.
Divisions of Nephrology and Cardiology
Children's National Hospital
111 Michigan Avenue, NW
Washington D.C. 20010
USA
Victoria F. Norwood, M.D.
Department of Pediatrics
University of Virginia
1204 W. Main Street
Charlottesville, VA 22903
USA
Summary
This book explores the psychosocial impacts of the kidney disease process and treatments on pediatric patients, including child development, schooling, coping, and resilience. Chronic illnesses and invasive treatments can be particularly impactful on children’s development and identity formation, and a multidisciplinary treatment model that takes psychosocial considerations into account is imperative for patients’ overall wellbeing. This book covers both specific disease-related concerns, including dialysis, transplantation, and nutrition, and broader issues such as collaborating with schools, supporting families, advocacy, and the transition to adult healthcare.
Written by experts in a rapidly developing area, this book is an excellent resource for all people impacted by and involved in caring for pediatric kidney diseases including practicing nephrologists and nephrologists in training, as well as psychosocial providers serving nephrology patients, and even families and patients themselves.
