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Zusatztext 'As we confront the implications of wide-ranging biomedical changes! issues of disability and of difference keep reappearing! like sharp rocks in roiling seas. This volume offers an invaluable breadth and depth of insight into those issues! highlighting how complex and varied they are! both in principle and in practice.' Henry T. Greely! Deane F. and Kate Edelman Johnson Professor of Law! Director! Center for Law and the Biosciences! Stanford University Informationen zum Autor I. Glenn Cohen is Professor of Law at Harvard Law School and the Faculty Director of the Petrie-Flom Center for Health Law Policy! Biotechnology! and Bioethics. He is one of the world's leading experts on the intersection of bioethics and the law! as well as health law. Glenn has written over 100 articles in venues such as the New England Journal of Medicine! the Journal of the American Medical Association! Nature! and the Harvard Law Review. Cohen is also the author! editor! or co-editor of twelve books. Carmel Shachar is the Executive Director of the Petrie-Flom Center for Health Law Policy! Biotechnology! and Bioethics at Harvard Law School. Carmel's scholarship focuses on law and health policy! with a focus on the regulation of value-based health care! the impact of the opioid epidemic! and anti-discrimination law and policy. She is also a lecturer on law at Harvard Law School! where she co-teaches a course on Health Care Rights in the Twenty-First Century. Anita Silvers! Professor of Philosophy and Health Equity Institute Affiliate! taught at San Francisco State University for over fifty years. During that time! she was a leader in the fight against barriers keeping students with disabilities out of California higher education system. Along with publishing more than 150 book chapters and articles! Anita received an appointment to the National Endowment for the Humanities National Council and made significant contributions to the field of philosophy and disability. Michael Ashley Stein is the Executive Director of the Harvard Law School Project on Disability! and a Visiting Professor at Harvard Law School since 2005. One of the world's leading experts on disability law and policy! he participated in the drafting of the United Nations Convention on the Rights of Persons with Disabilities; works globally with disabled peoples' organizations; consults with governments; advises United Nations bodies and national human rights institutions; and has brought landmark disability rights litigation. His path-breaking scholarship has been published by leading journals and academic presses. Zusammenfassung The ethical framing of disability has concrete impacts on the treatment of individuals with disability - from shaping health care! to influencing policy and law. Experts from diverse fields consider questions such as anti-discrimination law and access to care! making this volume a resource for anyone seeking a more nuanced view of disability. Inhaltsverzeichnis Introduction Carmel Shachar, I. Glenn Cohen and Michael Ashley Stein; Preface Tom Shakespeare; Part I. Disability: Definitions and Theories: Introduction I. Glenn Cohen; 1. Disability, health, and normal function Elizabeth Barnes; 2. Healthcare as eugenics Ani B. Satz; 3. Epistemic injustice, disability stigma, and public health law Daniel Goldberg; Part II. Disability in the Beginning and the End of Life: Introduction I. Glenn Cohen; 4. Abortion, the disabilities of pregnancy, and the dignity of risk Mary Anne Case; 5. The Down Syndrome Information Act and 'mere difference': redefining the scope of prenatal testing conversations? Marie-Eve Lemoine and Vardit Ravitsky; 6. Dementia, disability, and advance directives: defensible legal standards for dementia care Rebecca Dresser; Part III. Disability in the Clinical Setting: Introduction Carmel Shachar; 7. Expressing respect for people with disabilities in medical practice Ada...
