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Healthcare has undergone major changes in personalization, marketization, and digitalization in recent decades. Through conceptual and empirical studies from a variety of healthcare contexts, this book explores the role of activists and civil society in defining and defending the collective good in healthcare and its changing landscape.
List of contents
- 1: Susi Geiger: Healthcare Activism, Marketization, and the Collective Good
- 2: Ilaria Galasso and Susi Geiger: Preventing "Exit", Eliciting "Voice": Patient, Participant, and Public Involvement as Invited Activism in Precision Medicine and Genomics Initiatives
- 3: Vololona Rabeharisoa and Liliana Doganova: War on Diseases: Patient Organizations' Problematization and Exploration of Market Issues
- 4: Gillian Moran and Nicola Mountford: "Please Don't Put a Price on Our Lives": Social Media and the Contestation of Value in Ireland's Pricing of Orphan Drugs
- 5: Klaus Hoeyer and Henriette Langstrup: Datafying the Patient Voice: The Making of Pervasive Infrastructures as Processes of Promise, Ruination, and Repair
- 6: Lisa Lindén: Initiators, Controllers and Influencers: Enacting Patient Advocacy Roles in Cervical Cancer Screening Policy Practices
- 7: Mohammed Cheded and Gillian Hopkinson: Heroes, Villains, and Victims: Tracing Breast Cancer Activist Movements
- 8: Samantha D. Gottlieb: The Fantastical Empowered Patient
- 9: Barbara Prainsack and Hendrik Wagenaar: Markets, Morals, and the Collective Good after Covid-19
About the author
Susi Geiger is a Full Professor of Marketing and Market Studies in the College of Business, University College Dublin, and holder of a European Research Council (ERC) Consolidator Grant, 'MISFIRES and Market Innovation', which studies activism in health care markets. Her research focuses on how complex markets are organized, with specific interests in technology and health care markets in the context of social justice concerns. She has published numerous articles on these issues in journals such Organization Studies, Business & Society, Research Policy, Entrepreneurship Theory and Practice, and Marketing Theory. She also co-edited the volume Concerned Markets (Edward Elgar, 2014).
Summary
Healthcare has undergone major changes in personalization, marketization, and digitalization in recent decades. Through conceptual and empirical studies from a variety of healthcare contexts, this book explores the role of activists and civil society in defining and defending the collective good in healthcare and its changing landscape.
Additional text
Contributing authors identify struggles around intellectual property rights, medicines, and wars on various diseases, also addressing activism in the "shout loudest" social media culture. Some nuanced and useful case studies are included, e.g., an account of the digitization of Danish health care, or analysis of breast cancer social movement narratives. The book supports health care activism unabashedly.
