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«A brilliant, touching and thought-provoking book. Moving Along merges academic research with personal narrative and beautifully rendered drawings to create a one-of-a-kind book that contributes fresh and compelling perspectives. This life-affirming graphic novel is essential reading for anyone interested in Parkinson's and the power of art and community to sustain and nurture the human spirit.»
(David Leventhal, Program Director and Founding Teacher, Dance for PD®, Mark Morris Dance Group, Brooklyn, NY USA)
«This is a wonderfully accessible book that has been co-created by people living with Parkinson's, researchers and artists. In the true-to-life stories, the anxieties and challenges of living with Parkinson's are explored in evocative cartoons. Yet , as well as talking about the challenges, the book has the joy of dancing at its heart. Dance has proved to be an exceptionally good catalyst for living well with Parkinson's and this graphic novel illustrates individual journeys through Parkinson's and into dance. For anyone curious about dancing who now lives with Parkinson's, or knows someone who does, this book is for you. For anyone interested in graphic medicine, dance for wellbeing, or arts in healthcare, this book is an important addition to the literature. »
(Professor Sara Houston, author of Dancing with Parkinson's)
Meet Hugo, Karen, Alma, Helene, Anne-Marie, Poul, Lone, and Eskild, who go to Parkinson's dance class together. They are characters in this graphic novel, which is based on many stories about Parkinson's. The stories come from participants in Parkinson's dance who have talked about how dance involves bodily, aesthetic experiences, including the feeling of bubbles in their bodies and flying together. Dancing brings joy, energy, and community, and thereby strengthens the will to live, all important when a chronic illness turns your world upside down.
This book, a co-produced research-based graphic novel, is designed for use in the fields of arts and health, medical humanities, graphic medicine, and narrative medicine. It is also written for people with Parkinson's, or other chronic diseases, and their families. The book invites dialogue about the existential dimensions of chronic illness, especially Parkinson's, and long-term caregiving.
List of contents
Contents: Why make a graphic novel about dancing with Parkinson's? - The graphic novel - Analytical themes and quotations from interviews - What is the research project about? - What do people with Parkinson's and their partners experience as the role of Parkinson's dance in their everyday lives? - What possibilities and challenges arise in co-production in participatory research? - What is Parkinson's - or Parkinsonism? - Inspiration for further reading.
About the author
Lisbeth Frølunde is Associate Professor in Visual Communication in the Department of Communication and Arts at Roskilde University, Denmark. Her research concerns existential and dialogic perspectives on the arts and illness, especially in the field of graphic medicine. She develops co-creative arts-based research methods for telling experiences of caregiving and living with disabilities.
Louise Phillips is Professor of Communication and coordinator of the Dialogic Communication Research Group in the Department of Communication and Arts at Roskilde University, Denmark. Her research concentrates on collaborative, dialogic, and participatory approaches to communication and knowledge production, including in the field of participatory health research.
Maria Bee Christensen-Strynø is Assistant Professor of Visual Culture and co-leader of the research cluster Art and Health in the Department of Arts and Cultural Studies at the University of Copenhagen, Denmark. Her research traverses the fields of critical and cultural disability studies, visual culture, media studies, and dialogic communication.
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