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This book details the benefits of palliative care to improve the lives of patients with serious lung disease and their caregivers. Palliative care is specialized medical care for people living with a serious illness. This type of care is focused on providing relief from the symptoms and stress of a serious illness, and is often described as "an extra layer of support" for patients and their caregivers, as patients with malignant and nonmalignant lung disease experience great symptom burden and have advanced care planning needs.
This book has three main objectives:
- Define the role of palliative care in advanced lung disease
- Incorporate a patient-centered perspective in describing symptom burden and interventions to improve quality of life
- Provide current initiatives to expand evidence-based practice and improve access to palliative care
Written by leading experts in palliative care and respiratory medicine, the chapters seek to answer those objectives by first defining and describing palliative care, advanced lung disease, and inadequate palliative care in this patient population. Patient reported outcomes, quality of life, and interventions to help deal with the psychological toll of serious illness are then detailed, as well as pharmacological and non-pharmacological interventions for symptom management. Detailed information is additionally provided on current research studies and management for several lung diseases, including COPD, ILD, Lung Cancer, Pulmonary Arterial Hypertension, Neuromuscular disease, and pediatric lung disease. The more administrative aspects of palliative care programs are then covered with an example of a specialty palliative care program for advanced lung disease and advice on how to address policy that promotes palliative care. Finally, palliative care's role during a pandemic is thoughtfully considered.
This book is an ideal guide for clinicians, nurses, hospital administrators, teachers, students to help them understand and fill unmet care needs that many patients with serious lung disease experience.
List of contents
Palliative Care in Lung Disease.- An Introduction to Advanced Lung Disease.- Inadequate Palliative Care in Lung Disease.- Patient-Centeredness & Patient Reported Measures (PRM) in Palliation of Lung Disease.- Quality of Life in Chronic Lung Disease.- Breathlessness.- Preparatory and anticipatory grief, anxiety and depression in life-limiting lung disease.- Symptom Management in Advanced Lung Disease.- Communication in Palliative Care.- Palliative Care in COPD.- Palliative care in interstitial lung disease.- The Role of Palliative Care in Lung Cancer.- Palliative care in patients with neuromuscular diseases.- Palliative Care in Pulmonary Arterial Hypertension.- Palliative Care for Children with Lung Diseases.- Specialty Palliative Care Program ILD.- Withdrawal of Mechanical Ventilation: Considerations to Guide Patient and Family Centered Care and the Development of Health Care Policy.- Palliative Care during a Pandemic.
About the author
Kathleen Oare Lindell, PhD, RN, ATSF, FAAN is the Mary Swain Endowed Chair in Palliative Care Health and an Associate Professor of Nursing and Medicine at the Medical University of South Carolina College of Nursing with a secondary appointment in the Department of Medicine Pulmonary Critical Care Division.
Sonye Karen Danoff, MD, PhD, FCCP, ATSF is an Associate Professor of Medicine at Johns Hopkins, Co-Director of the Johns Hopkins Interstitial Lung Disease/Pulmonary Fibrosis Program and Associate Director of the Johns Hopkins Myositis Center.
