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"A beautifully wrought book that is an important addition to the social history of medicine. It is a compassionate and highly readable account of a part of the medical picture that is too often ignored—the patients."—Douglas Starr, author of Blood: An Epic History of Medicine and Commerce
"Susan Resnik has interpreted the engrossing story of hemophilia to engage both the sophisticated scientist and the curious general reader. She raises important ethical issues and helps translate words into actions, turning information into real change."—Clarence E. Pearson, President, National Center for Health Education
"The struggles of the hemophilia community are artfully described as the author traces the journey of hemophilia from ignorance and caricature to a growing international awareness of the need for health education, quality control over therapies, and the application of the ethical standards of our public health community in the treatment of hemophiliac persons."—Audrey R. Gotsch, President, American Public Health Association
About the author
Susan Resnik teaches at the University of California, San Diego, Medical School, and was formerly Director of Education of the National Hemophilia Foundation. She lives in Del Mar, California.
Summary
Chronicles the emergence and transformation of hemophilia community. This book sets the story within our national political landscape - where the disease is also a social, psychological, and economic experience.
