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"This book is meant for caregivers- parents, loved ones, guardians, providers, physicians, and anyone who is taking care of patients who have Prader-Willi Syndrome. You all already know that you will have to watch out for overeating and consequent weight gain. In my experience, what people are most unprepared for are the neuropsychiatric symptoms that often complicate this genetic disorder. Being a psychiatrist, I have tried my best to reflect the various evidence-based psychotherapeutic modalities which can be used to manage behavioral problems in PWS. However, my psychologist and other mental health provider colleagues may find this text sparse when it comes to discussing the value of psychotherapy. Despite the brevity of information on psychotherapy, the reader should note that evidence-based behavioral and psychological interventions can be life-changing for many individuals with PWS and their families. Readers should also note that PWS complicates an already complex human neurobiology. No text can cover all the conditions and complications that affect patients with PWS. Many non-psychiatric conditions can cause psychiatric symptoms, not to mention medications that may be given for an unrelated concern but lead to behavior change. Despite all my efforts, it is likely that many important aspects of PWS which have psychiatric implications have not been adequately addressed. To that end, in a search of the literature, we found limitations in our ability to cite some of the anecdotal findings of clinical practice. However, everything stated in this text is supported by what is generally accepted by the experts of this syndrome"--
List of contents
Preface; 1. 'Knowing your patient: a bio-psycho-social perspective'' Deepan Singh; 2. Caregiver burden in prader-willi syndrome Carole Filangieri and Deepan Singh; 3. Establishing a relationship with a mental health provider Carole Filangieri and Deepan Singh; 4. Sleep disorders in prader-willi syndrome Mary Cataletto, Sumit Bhargava and Deepan Singh; 5. Autism in prader-willi syndrome Deepan Singh and Emily Mozdzer; 6. Anxiety in prader-willi syndrome Deepan Singh and Emily Mozdzer; 7. Picking, hoarding, and elopement in prader-willi syndrome Deepan Singh; 8. Attention deficit/hyperactivity disorder in prader-willi syndrome Deepan Singh; 9. Agitation and aggression in prader-willi syndrome Deepan Singh; 10. Mood disorders in prader-willi syndrome Deepan Singh; 11. 'Psychotic disorders in prader-willi syndrome' Deepan Singh; 12. Psychopharmacology in prader-willi syndrome Deepan Singh, Emily Mozdzer and Aaron Pinkhasov; 13. A caregiver's perspective Nina Roberto, Deepan Singh and Carole Filangieri; 14. The neurobiology of prader-willi syndrome Deepan Singh; 15. Final reflections on the neurobehavioral manifestations of prader-willi syndrome Deepan Singh.
About the author
Deepan Singh is a child, adolescent, and adult psychiatrist, and the Vice-Chair of Ambulatory Psychiatry Services at Maimonides Medical Center in New York City. He serves on the scientific review boards for Prader-Willi Syndrome Association, USA, and the Foundation for Prader-Willi Research.
Summary
A practical guidebook providing a case-based approach to neurobehavioral problems in people with Prader-Willi Syndrome (PWS). Includes extensive treatment plans and covers a range of issues such as anxiety, skin-picking, ADHD, disruptive behavior, mood disorders, and psychosis. A must-read for clinicians and caregivers helping individuals with PWS.
