De-Sequencing - Identity Work with Genes

Are you your genes? De-Sequencing: Identity Work with Genes explores this perplexing question, showing how different forms of knowledge must be contextualized to become meaningful. It is generally assumed that the genomic sequence adds up to the identity-forming material life is made of. Yet identity cannot itself adopt the form of a sequence. As the authors in this volume show, the genome must be 'de-sequenced' by human language to render it interpretable and meaningful in a social context. The book unpacks this type of 'sequence-speech' in engaging detail, adopting a personal, social, cultural, and bio-political approach to examine the transformation of human identity and reflexivity in the era of genetic citizenship.

List of contents

1. Introduction.- Part I Science and Medicine.- 2. Personalised Medicine: Problems of translation into the human domain.- 3. Contemporary Future Parents: From tentative pregnancy and moral pioneers to educated moral gamblers.- Part II Philosophy of Biology.- 4. Developmental narratives.- 5. Epigenetics, responsiveness and embodiment.- 6. Space and time of developmental narratives.- Part III Societal Contexts.- 7. Data mining in systems medicine and the project of solidarity - the interface of genomics and society revisited.- 8. Experimenting with solidarity in biomedicine: from practice to prin-ciple?.- 9. The moral making of data rich personalised medicine.- Part IV Families.- 10. An ordering of letters: my own personal genome.- 11. Illness in the world of the genome.- 12. How personal is the genome? The shadow of genetic predictions.- Part V Individual Experiences.- 13. Lived genome phenomenology. Exploring the genetics of chronic inflammatory bowel diseases.- 14. Existential storytelling in a genomic world.

About the author

Dr. Dana Mahr is senior researcher and lecturer at the University of Geneva, Switzerland. Her research centers on how we make sense out of science, technology, and medicine from a comparative and interdisciplinary perspective.

Martina von Arx, M.A. is a PhD candidate at the University of Geneva, Switzerland. She explores how health professionals and patients experience digital technologies as part of the current developments of personalized health in Switzerland.

Product details

Assisted by	Martina von Arx (Editor), Dan Mahr (Editor), Dana Mahr (Editor), VON ARX (Editor), von Arx (Editor), Martina von Arx (Editor)
Publisher	Springer, Berlin
Languages	English
Product format	Paperback / Softback
Released	22.12.2021
EAN	9789811577307
ISBN	978-981-1577-30-7
No. of pages	181
Dimensions	148 mm x 11 mm x 210 mm
Illustrations	XVII, 181 p. 7 illus., 6 illus. in color.
Series	Health, Technology and Society
Subject	Social sciences, law, business > Sociology > Labour, economic and industrial sociology

Product details

• Assisted by: Martina von Arx (Editor), Dan Mahr (Editor), Dana Mahr (Editor), VON ARX (Editor), von Arx (Editor), Martina von Arx (Editor)
• Publisher: Springer, Berlin
• Languages: English
• Product format: Paperback / Softback
• Released: 22.12.2021
• EAN: 9789811577307
• ISBN: 978-981-1577-30-7
• No. of pages: 181
• Dimensions: 148 mm x 11 mm x 210 mm
• Illustrations: XVII, 181 p. 7 illus., 6 illus. in color.
• Series: Health, Technology and Society
• Subject: Social sciences, law, business > Sociology > Labour, economic and industrial sociology