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Informationen zum Autor Bonnie S. LeRoy, MS, CGC, Professor, Department of Genetics, Cell Biology and Development, University of Minnesota, Minneapolis, MN, USA. Patricia McCarthy Veach, PhD, LP, Professor Emerita, Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA. Nancy P. Callanan, MS, CGC, Director Emeritus, MS Genetic Counseling Program, University of North Carolina at Greensboro, NC, USA. Klappentext The second edition of Genetic Counseling Practice: Advanced Concepts and Skills, provides in-depth content regarding the advanced competencies for meeting patient needs across the changing landscape of genetic counseling practice. The content aligns with the Reciprocal Engagement Model (REM) of practice which integrates the biomedical knowledge and psychosocial aspects of genetic counseling.This edition has been revised and expanded to reflect advances made in the present-day field. Edited by a team two genetic counselors and a psychologist, the chapters offer a holistic picture of genetic counseling. Chapter authors are all recognized experts in the profession. The chapters are grounded in evidence-based practice and research. Each chapter includes learning activities to help readers apply concepts and skills. Featured topic areas include:* Meeting the needs of culturally diverse patients* Addressing challenging patient dynamics* Working with children, adolescents and families* Using emerging service delivery models for genetic counseling* Engaging in self-reflective, deliberate practice* Promoting genetic counselor professional developmentGenetic Counseling Practice is an indispensable guide to the complex and evolving field of genetic counseling, and this updated second edition will help practitioners and trainees alike navigate its most pressing and practical challenges with skill and care. Zusammenfassung As genetic medicine and testing continue to expand, the role of the genetic counselor is transforming and evolving. Genetic Counseling Practice: Advanced Concepts and Skills was the first text to address ways that genetic counselors can deepen their skills to meet expanding practice demands. This updated and revised second edition further helps readers develop their abilities in gathering relevant data and interpreting it for patients, as well as supporting their role in incorporating patient values into clinical practice. Inhaltsverzeichnis Preface x About the Authors xi Acknowledgments xvii 1 Introduction 1 Bonnie S. LeRoy, Patricia McCarthy Veach, and Nancy P. Callanan Development of the 2nd Edition 2 References 7 2 Complicated Shadows: The Limitations of Autonomy in Genetic Counseling Practice 9 Robert G. Resta Objectives 9 Definition and Focus 10 Seven Limitations of Autonomy 11 Summary 18 Learning Activities 19 References 21 3 Actively Engaging with Patients in Decision-Making 25 Andrea Shugar and Cheryl Shuman Objectives 25 A Brief History of the Medical Encounter: From Paternalism to Shared Decision-Making 25 Psychological Aspects of Decision-Making 26 Informed Decision-Making 30 Summary 41 Learning Activities 41 Acknowledgment 48 References 48 4 Risk Assessment and Communication: A Complex Process 53 Shannan Delany Dixon, MaryAnn W. Campion, and Claire N. Singletary Objectives 53 Introduction 53 Risk Assessment in Genetic Counseling 54 Risk Communication 61 Influences on Risk Perception 65 Summary 70 Learning Activities 70 References 73 5 A Genetic Counselor's Guide to Understanding Grief 79 Nadia Ali and Cecelia Bellcross Objectives 79 Introducti...
List of contents
Preface x
About the Authors xi
Acknowledgments xvii
1 Introduction 1
Bonnie S. LeRoy, Patricia McCarthy Veach, and Nancy P. Callanan
Development of the 2nd Edition 2
References 7
2 Complicated Shadows: The Limitations of Autonomy in Genetic Counseling Practice 9
Robert G. Resta
Objectives 9
Definition and Focus 10
Seven Limitations of Autonomy 11
Summary 18
Learning Activities 19
References 21
3 Actively Engaging with Patients in Decision-Making 25
Andrea Shugar and Cheryl Shuman
Objectives 25
A Brief History of the Medical Encounter: From Paternalism to Shared Decision-Making 25
Psychological Aspects of Decision-Making 26
Informed Decision-Making 30
Summary 41
Learning Activities 41
Acknowledgment 48
References 48
4 Risk Assessment and Communication: A Complex Process 53
Shannan Delany Dixon, MaryAnn W. Campion, and Claire N. Singletary
Objectives 53
Introduction 53
Risk Assessment in Genetic Counseling 54
Risk Communication 61
Influences on Risk Perception 65
Summary 70
Learning Activities 70
References 73
5 A Genetic Counselor's Guide to Understanding Grief 79
Nadia Ali and Cecelia Bellcross
Objectives 79
Introduction 80
The Grief Process 82
Types of Grief 89
Conclusion 101
Learning Activities 102
References 105
6 Patient Anger: Insights and Strategies 109
Lynn Schema
Objectives 109
Introduction 109
Challenges Posed by Patient Anger 116
Practice Applications 118
Conclusion 123
Summary Points 123
Learning Activities 124
References 127
7 Resistance and Adherence: Understanding the Patient's Perspective 131
Krista Redlinger-Grosse
Objectives 131
Definition and Concepts 132
Resistance 133
Adherence and Non-adherence 140
Summary 144
Learning Activities 145
References 148
8 Countertransference: Making the Unconscious Conscious 153
Krista Redlinger-Grosse
Objectives 153
Definitions and Concepts 154
The Countertransference Process 155
Manifestations and Effects of Countertransference 161
Management of Countertransference 166
Summary 169
Learning Activities 169
References 171
9 Supporting Family Communication About Genetic Conditions 177
Marion Mcallister, Rhona Macleod, and Alison Metcalfe
Objectives 177
Introduction 177
Literature Review 178
Application of Select Family Systems Theory Interventions Adapted to Genetic Counseling 180
Summary 186
Learning Activities 187
Acknowledgments 188
References 188
10 Developmentally Based Approaches for Counseling Children and Adolescents 191
Stephanie Austin and Kelly Schoch
Objectives 191
Introduction 191
Child and Adolescent Development 192
Theoretical Framework 195
Chronic Illness and Children 197
Strategies for Genetic Counseling with Children and Adolescents 199
Conclusion 212
Summary Points 212
Learning Activities 212
References 214
11 Cultural Competency and Genetic Counseling: Key Concepts 219
Nancy Steinberg Warren
Objectives 219
Introduction
