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Informationen zum Autor Bonnie S. LeRoy, MS, CGC, Professor, Department of Genetics, Cell Biology and Development, University of Minnesota, Minneapolis, MN, USA. Patricia McCarthy Veach, PhD, LP, Professor Emerita, Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA. Nancy P. Callanan, MS, CGC, Director Emeritus, MS Genetic Counseling Program, University of North Carolina at Greensboro, NC, USA. Klappentext The second edition of Genetic Counseling Practice: Advanced Concepts and Skills, provides in-depth content regarding the advanced competencies for meeting patient needs across the changing landscape of genetic counseling practice. The content aligns with the Reciprocal Engagement Model (REM) of practice which integrates the biomedical knowledge and psychosocial aspects of genetic counseling.This edition has been revised and expanded to reflect advances made in the present-day field. Edited by a team two genetic counselors and a psychologist, the chapters offer a holistic picture of genetic counseling. Chapter authors are all recognized experts in the profession. The chapters are grounded in evidence-based practice and research. Each chapter includes learning activities to help readers apply concepts and skills. Featured topic areas include:* Meeting the needs of culturally diverse patients* Addressing challenging patient dynamics* Working with children, adolescents and families* Using emerging service delivery models for genetic counseling* Engaging in self-reflective, deliberate practice* Promoting genetic counselor professional developmentGenetic Counseling Practice is an indispensable guide to the complex and evolving field of genetic counseling, and this updated second edition will help practitioners and trainees alike navigate its most pressing and practical challenges with skill and care. Zusammenfassung As genetic medicine and testing continue to expand, the role of the genetic counselor is transforming and evolving. Genetic Counseling Practice: Advanced Concepts and Skills was the first text to address ways that genetic counselors can deepen their skills to meet expanding practice demands. This updated and revised second edition further helps readers develop their abilities in gathering relevant data and interpreting it for patients, as well as supporting their role in incorporating patient values into clinical practice. Inhaltsverzeichnis Preface x About the Authors xi Acknowledgments xvii 1 Introduction 1 Bonnie S. LeRoy, Patricia McCarthy Veach, and Nancy P. Callanan Development of the 2nd Edition 2 References 7 2 Complicated Shadows: The Limitations of Autonomy in Genetic Counseling Practice 9 Robert G. Resta Objectives 9 Definition and Focus 10 Seven Limitations of Autonomy 11 Summary 18 Learning Activities 19 References 21 3 Actively Engaging with Patients in Decision-Making 25 Andrea Shugar and Cheryl Shuman Objectives 25 A Brief History of the Medical Encounter: From Paternalism to Shared Decision-Making 25 Psychological Aspects of Decision-Making 26 Informed Decision-Making 30 Summary 41 Learning Activities 41 Acknowledgment 48 References 48 4 Risk Assessment and Communication: A Complex Process 53 Shannan Delany Dixon, MaryAnn W. Campion, and Claire N. Singletary Objectives 53 Introduction 53 Risk Assessment in Genetic Counseling 54 Risk Communication 61 Influences on Risk Perception 65 Summary 70 Learning Activities 70 References 73 5 A Genetic Counselor's Guide to Understanding Grief 79 Nadia Ali and Cecelia Bellcross Objectives 79 Introducti...
