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What does the everyday reality of being disabled mean for those involved? Bringing together a range of qualitative methodologies, interviews and ethnographies in a global context, this collection highlights the mundane interactions and everyday occurrences in the lives of people with disabilities across the life-course. It will provi
List of contents
List of figures; List of contributors; Acknowledgements; Part I. Disability, Normalcy, and the Everyday -Chapter 1. Introduction: disability, normalcy, and the everyday -Gareth M. Thomas and Dikaios Sakellariou; Chapter 2. Keeping up appearances: family carers and people with dementia negotiating normalcy through dress practice -Christina Buse and Julia Twigg; Part II: Youth, Normalcy, and Disability Futures Chapter 3. The everyday worlds of disabled children -Tillie Curran, Kirsty Liddiard, and Katherine Runswick-Cole; Chapter 4. Pursuit of ordinariness: dynamics of conforming and resisting in disabled young people’s embodied practices -Janice McLaughlin and Edmund Coleman-Fountain; Chapter 5. Worlding the ‘new normal’ for young adults with disabilities -Faye Ginsburg and Rayna Rapp; Part III: Doing Care, Creating Living Chapter 6. Who’s disabled, Babe? Carving out a good life among the normal and everyday -Helen Errington, Karen Soldatic, and Louisa Smith; Chapter 7. ‘I employ a crew that can do life with me’: a young woman’s creative self-management of support workers -Nikki Wedgewood, Louisa Smith, and Russell Shuttleworth; Chapter 8. (Re)negotiating normal every day: phenomenological uncertainty in Parkinson’s disease -Narelle Warren and Darshini Ayton; Part IV: Global Disability Politics Chapter 9. Ethical (dis)enchantment, afflictive kinship, and Ebola exceptionalism -Maria Berghs; Chapter 10. Disability and healthcare in everyday life - Hannah Kuper, Goli Hashemi, and Mary Wickenden; Index
About the author
Gareth M. Thomas is a Lecturer in the School of Social Sciences at Cardiff University, UK. He is a sociologist interested in medicine, disability, stigma, reproduction, and place. His first research monograph – Down's Syndrome Screening and Reproductive Politics: Care, Choice, and Disability in the Prenatal Clinic – was published by Routledge in March 2017.
Dikaios Sakellariou is a Senior Lecturer in the School of Healthcare Sciences at Cardiff University, UK. He is interested in health inequalities, experiences of disability and disablement, and the intersubjective nature of care practices. He has co-authored and co-edited the volumes A Political Practice of Occupational Therapy and Occupational Therapies without Borders (with Nick Pollard and Frank Kronenberg), and Politics of Occupation-Centred Practice (with Nick Pollard).
Summary
What does the everyday reality of being disabled mean for those involved? Bringing together a range of qualitative methodologies, interviews and ethnographies in a global context, this collection highlights the mundane interactions and everyday occurrences in the lives of people with disabilities across the life-course. It will provi
Additional text
'This is a ‘must read’ book that draws attention to everyday life with disability and disablism - across the globe. It crosses social science borders to enrich our understanding of disability diversity in original and informative ways.' - Carol Thomas, Professor of Sociology, Lancaster University‘Sakellariou and Thomas' book is an important emergent approach to disability studies scholarship that is of translational relevance across the social sciences and the applied health professions. It is a fresh new approach that, at the same time, takes us back to disability studies’ very foundations in the critical social sciences engagement with disability. The authors reveal experiences -- toileting, dressing and other obscured but crucial moments of daily life — as both meaningful in highly individual ways and to have shared resonance for disabled people collectively.’ - Pamela Block, Professor and Director, Disability Studies Concentration, Stony Brook University
