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This warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey.
List of contents
Acknowledgments
The Unexpected Journey Begins
Chapter 1. Navigating Your Feelings
Chapter 2. Staying Healthy on the Journey
Chapter 3. Getting What You Need on the Road to the New Normal
Chapter 4. Communicating With Your Child: It's a Two-Way Street
Chapter 5. Your Co-Pilots: Other Parents and Parent Figures in Your Child’s Life
Chapter 6. Getting Everyone on Board: Siblings and Other Family Members
Chapter 7. Mechanics of Working With the Medical Team
Chapter 8: Mechanics of Working With the School Team
Chapter 9: The Cone Zone: Setting Healthy Boundaries
Chapter 10. When Your Journey Includes Hospital Stays
Chapter 11. The Journey Through Death and Beyond
Chapter 12. Concluding Thoughts: Building Resilience on the Journey
Resources for Your Journey
Notes
About the Authors
About the author
Frank J. Sileo, PhD and Carol S. Potter, MFT
Summary
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. The book places your psychological well-being front and centre, so you can be the best caregiver possible for your child.