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How did American geneticists go from fearing the dysgenic effects of deaf intermarriage to considering modern biotechnology a threat for Deaf culture? This book provides insight into changing ideas of what deafness is, what science and medicine should achieve, and to the transformative effect of exchange between scientists and deaf communities.
List of contents
Introduction: of races and genocides
1 The sciences of deafness: deaf people as objects of research, reform, and eugenics, 1900-1940
2 Concerned and puzzled: heredity research and counselling at the Clarke School, 1930-1960
3 Minorities and pathologies: psychogenetic counselling at the New York State Psychiatric Institute, 1955-1969
4 Preventing tragedy, negotiating normalcy: the changing meaning of Usher syndrome 1960-1980
5 Signing risk and chance: collaborating for culturally sensitive counselling, 1970-1990
Conclusion: from Bell to biodiversity
Bibliography
Index
About the author
Marion Andrea Schmidt is a Research Associate at the Department of Medical Ethics and History of Medicine at the University Medical Center Göttingen
Summary
How did American geneticists go from fearing the dysgenic effects of deaf intermarriage to considering modern biotechnology a threat for Deaf culture? This book provides insight into changing ideas of what deafness is, what science and medicine should achieve, and to the transformative effect of exchange between scientists and deaf communities. -- .
