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Informationen zum Autor Waqar I.U. Ahmad is Professor of Primary Care Research and Director, Centre for Research in Primary Care, Leeds University. His previous books include 'Race' and Health in Contemporary Britain (with K. Atkin), 'Race' and Community Care, both by Open University Press, and Deafness and Ethnicity: Services, Policy and Politics (with Jones, Darr and Nisar), Policy Press. Klappentext This book brings together significant emerging work on ethnicity, disability, chronic illness and caring by leading researchers in the field. They explore the experience of minority ethnic people, and examine: * the conceptualization of disability and chronic illness and the implications of particular definitions * the everyday living with a disability or chronic ill health * the role of services in providing support to disabled people and carers In theoretical terms the book problematizes distinctions between users and carers, between the social model of disability and more individual medical discourses, and argues that chronic illness and impairment can be made sense of only within personal, social and citizenship contexts; and ethnicity and racism remain important aspects of this wider context for minority ethnic people with impairment or chronic ill health. In terms of policy and practice, this volume highlights the continued problems experienced by minority ethnic disabled and chronically ill people and their families; and it shows that, although many of these users' experiences are shared with white users, the intensity and persistence of disadvantage that are faced by minority ethnic users can only be understood by reference to their racialized worlds. This book offers both theoretical advancement and practice relevance in the field, and is essential reading for students, teachers and researchers in health and community care, disability studies, social work, nursing, public health, social policy and sociology. The book will also be of value to practitioners and policy makers in health and social services. Zusammenfassung Brings together significant emerging work on ethnicity! disability! chronic illness and caring by leading researchers in the field. This book explores the experience of minority ethnic people! and examines the conceptualization of disability and chronic illness! and the implications of particular definitions. Inhaltsverzeichnis Introduction Perceptions of disability and care-giving relationships in South Asian communities 'Causing havoc among their children' parental and professional perspectives on consanguinity and childhood disability Living with sickle cell disorder how young people negotiate their care and treatment 'I send my child to school and he comes back an Englishman' minority ethnic deaf people, identity politics and services Language, communication and information the needs of parents caring for a severely disabled child Service support to families caring for a child with a sickle cell disorder or thalassaemia major parents' perspectives South Asian carers' experiences of primary health care teams Bibliography Index. ...
