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Engaging the reader with a variety of patient narratives and health communication scholarship, this book illustrates how narratives can create change; how differences matter; and how identity, relational, and cultural factors intersect to affect patienthood.
List of contents
Chapter 1: Narrating Patient Experience: Benefits for multiple audiences
Chapter 2: From Stories to Discoveries: Patients' Narratives as Advocacy in Biomedical Research
Chapter 3: Cultural Communication Competency as a Two-Way Street: My Journey from Medical Avoidance to Patient Self-Advocacy
Chapter 4: Who will tell our stories? Emerging health legacies following the 2014-2016 Ebola Epidemic
Chapter 5: African Americans and Hospice Care: On Social Risk, Privacy Management, and Relational Health Advocacy
Chapter 6: Can You Please Direct me to a Doctor That Has a Heart?: A Stage 4 Breast Cancer Patient Narrative
Chapter 7: Exploring the Effects of Patient-Provider Communication on the Lives of Women with Vulvodynia
Chapter 8: Queer Patienthood
Chapter 9: An Autoethnographic Account of Navigating Patienthood as a Person with Hearing Impairment
Chapter 10: From Consumer to Community-Based Researcher: Lessons from the HIV Stigma Index
Chapter 11: The Gendered Nature of Generosity in Post-Hysterectomy "Dear Honey." Letters
Chapter 12: The Narrative Journey and Decision-Making Process of Plastic Surgery Patienthood
Chapter 13: Narrative Sense-Making in Systemic Lupus Erythematosus
Chapter 14: Healthy mother, healthy baby: An Autoethnography to Challenge the Dominant Cultural Narrative of the Birthing Patient
Chapter 15: Abelist Biases
About the author
Peter M. Kellett is professor of communication studies at The University of North Carolina at Greensboro.Peter M. Kellett is professor of communication studies at The University of North Carolina at Greensboro.Andrew Spieldenner is Professor of Communication at California State University - San Marcos, USA, with 30 years of experience in the HIV movement. He is a community-engaged researcher who works with gay, bi, queer, and trans communities in over 30 countries. Openly living with HIV, Dr. Spieldenner currently leads the non-profit organization MPact Global Action for Gay Rights & Health.