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This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
List of contents
Chapter 1. Neuropalliative Care - Introduction.- Section I: Disease and Symptom-Specific Considerations.- Chapter 2. Severe Acute Brain Injury.- Chapter 3. Prolonged Coma and Early Disorders of Consciousness.- Chapter 4. Chronic Disorders of Consciousness.- Chapter 5. Parkinson's Disease and Related Disorders.- Chapter 6. Dementia.- Chapter 7. Multiple Sclerosis.- Chapter 8. Neuromuscular Diseases.- Chapter 9. Malignant Brain Tumors.- Chapter 10. Child Neurology.- Section II: Improving Communication and Treatment Decisions.- Chapter 11. Communicating Effectively.- Chapter 12. Prognostication.- Chapter 13. Improving Medical Decisions.- Chapter 14. Addressing and Managing Requests to Hasten Death.- Chapter 15. Withholding and Withdrawing Life-Sustaining Treatments.- Section III: Crosscutting Issues in Palliative Care.- Chapter 16. Hospice and End of Life Care in Neurologic Disease.- Chapter 17. Pain Assessment and Management.- Chapter 18. Spiritual Care.- Chapter 19. Clinician Self-Care.- Chapter 20. Caregiver Assessment and Support.- Chapter 21. Practical Implementation Strategies for Outpatient Neurology Palliative Care.- Chapter 22. The Future of Neuropalliative Care.
About the author
Claire J. Creutzfeldt, MD
Assistant Professor
Department of Neurology
University of Washington Harborview Medical Center
Seattle, WA
USA
Benzi M. Kluger, MD, MS, FAAN
Professor of Neurology
Chief Neurology Supportive and Palliative Care Section
Department of Neurology
University of Colorado Anschutz Medical Campus
Aurora, CO
USA
Robert G. Holloway, MD, MPH, FAAN
Professor and Edward A. and Alma Vollertsen Rykenboer Chair
Department of Neurology
University of Rochester Medical Center
Rochester, NY
USA
Summary
This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
Additional text
“The authors have done a marvelous job identifying common gaps in the care of patients with neurological illness and offer practical advice on addressing those gaps through a palliative care approach.” (Nina Leyson Martinez, Doody's Book Reviews, March, 22 , 2019)
Report
"The authors have done a marvelous job identifying common gaps in the care of patients with neurological illness and offer practical advice on addressing those gaps through a palliative care approach." (Nina Leyson Martinez, Doody's Book Reviews, March, 22 , 2019)
