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Reifying Women's Experiences with Invisible Illness: Illusions, Delusions, Reality provides a platform that recognizes that the experience of invisible illness is greatly influenced by context and personal circumstance. The contributors to this book include women who exude diversity as it relates to race and ethnicity, career, religious experience, education, social support, and interpersonal relationships. From recent college graduates to senior level professionals, these women share stories that create a space to advocate on behalf of the individual who is chronically ill rather than focusing on the often privileged perspective of medical professionals.
List of contents
Contents
Foreword: Communicating from/as/with the Body
Laura Ellingson
Introduction: Not an Illusion
Kesha Morant Williams
Chapter 1: My Sister's Keeper: Sibling Social Support and Chronic Illness
Kesha Morant Williams
Chapter 2: Temporal Reflections of UC Remission: An Autoethnography of Body Image & Acceptance
Nicole Defenbaugh
Chapter 3: A Semblance of Normalcy: Social Isolation and the Burden of Looking Well
Hannah Thyberg
Chapter 4: Transparency and Disclosure: Tools for Building Trust and Confidence
Emily Pfender
Chapter 5: An Unexpected Road to Discovery: Finding One's Self in the Midst of Uncertainty
Launick Saint-Fort
Chapter 6: When Lifestage Matters: A Narrative Account of a Pregnancy-Related Invisible Illness
Eletra Gilchrist Petty
Chapter 7: Reframing Personal and Professional Identity in Connection to "Ability"
Cerise L. Glenn
Chapter 8: Duty, Honor, Country.sickness: Finding Strength in my Personal Battle with Gulf War Illness
Elizabeth Desnoyer-Colas
Chapte
About the author
Tomaž Grušovnik is associate professor of philosophy and senior research fellow at the Faculty of Education, University of Primorska, and at the Department of Philosophy, Faculty of Arts, University of Maribor, Slovenia.Annette D. Madlock is ordained minister and chaplain, independent scholar, community, and women’s health advocate. Dr. Cerise L. Glenn is associate professor in the Department of Communication Studies at the University of North Carolina at Greensboro.
Summary
This book provides an alternative to narratives that privilege the biomedical perspective on women’s invisible illnesses. The contributors include women who exude diversity as it relates to race and ethnicity, career, religious experience, education, social support, and interpersonal relationships.
