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Informationen zum Autor Professor Peter Rosenbaum MD FRCP(C) is Professor of Paediatrics at McMaster University and the CanChild Centre for Childhood Disability Research, Ontario Canada. Professor Gabriel Ronen MD MSc FRCP(C) is Professor of Paediatrics at McMaster University and McMaster University Children's Hospital, Ontario, Canada. Eric Racine PhD is Director of the Neuroethics Research Unit, Associate Research Professor and Associate Director, Academic Affairs of the Institut de recherches cliniques de Montréal, Quebec, Canada. Professor Bernard Dan MD PhD is Professor of Neurophysiology and Developmental Neurology at the Université libre de Bruxelles (ULB), and Director of Rehabilitation at Inkendaal Rehabilitation Hospital, Belgium. Jennifer Johannesen MsC is an author, writer, speaker, and parent. Klappentext Have you ever Wondered how to deal with a family that repeatedly fails to keep clinic appointments? Disagreed with colleagues over a proposed course of treatment for a child? Considered ways to 'bump' a child on a waiting to speed up their assessment? These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful "Themes for Discussion" are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence. Inhaltsverzeichnis Introduction 1 SECTION A: SETTING THE STAGE: ATTUNING MORAL AND ETHICAL THINKING 1 A parent's perspective on everyday ethics 7 Jennifer Johannesen 2 Present-day health and neurodevelopmental disability 17 Peter L. Rosenbaum and Gabriel M. Ronen with contributions by Barbara J. Cunningham 6 The importance of beliefs and relationships in the decision-making process 75 Howard Needelman and David Sweeney 7 Humanism in the practice of neurodevelopmental disability: examples of challenges and opportunities 85 Garey Noritz 8 Truth with hope: ethical challenges in disclosing 'bad' diagnostic, prognostic and intervention information 97 Iona Novak, Marelle Thornton, Cathy Morgan, Petra Karlsson, Hayley Smithers-Sheedy and Nadia Badawi SECTION C: ETHICAL ISSUES IN ADDRESSING FAMILIES' PRIORITIES 9 Different perspectives, different priorities: using a strengths-based approach to gain trust and find common ground 111 Dinah S. Reddihough and Jane Tracy 3 Can moral problems of everyday clinical practice ever be resolved? A proposal for integrative pragmatist approaches 33 Eric Racine SECTION B: EARLY DAYS, THE START OF THE DIFFERENT DEVELOPMENTAL JOURNEY 4 Prenatal consultation: ethical challenges and proposed solutions 49 Jennifer Cobelli Kett, Hannah M. Tully and Dan Doherty 5 Evidence-based neonatal neurology: decision-making in conditions of medical uncertainty 61 Isabelle Chouinard, Eric Racine and Pia Wintermark 10 The importance of patients' and families' narratives: developing a philosophy of care to support patient/family goals 123 Jean C. Kunz Stansbury and Scott Schwantes SECTION D: RESPECTING SOCIAL AND CULTURAL VALUES 14 Terminology in neurodevelopmental disability: is using stigmatizing language harmful? 161 Lisa Samson-Fang 15 Everyday ethics in Rwanda: perspectives on hope, fatigue, death and regrowth 169 Emily Esmaili and Christian Ntizimira 16 When expectations diverge: addressing our cultur...
