Fr. 102.00

Meeting Health Information Needs Outside of Healthcare - Opportunities and Challenges

English · Paperback / Softback

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Informationen zum Autor Dr. Catherine Arnott Smith is an Associate Professor in the School of Library & Information Studies, University of Wisconsin-Madison. She holds a PhD in Library & Information Sciences/Medical Informatics and an MSIS in Information Sciences/Medical Informatics (University of Pittsburgh, 2002 and 2000 respectively), as well as master’s degrees in library and information science and American History/archives administration (University of Michigan, both degrees conferred in 1992). Her research interests are consumer health vocabularies and consumer interactions with electronic medical records and personal health records, as well as clinical information exchange in nonclinical spaces, such as public libraries and university disability resources centers. Dr. Alla Keselman is a Senior Social Science Analyst in the Division of Specialized Information Services (SIS), National Library of Medicine, United States National Institutes of Health. She holds a PhD in human cognition and learning and an MA in biomedical informatics from Columbia University. Dr. Keselman conducts research into lay understanding of complex health concepts, health literacy, and consumer health informatics, as well as the role of libraries and librarians in providing health information to the public. Dr. Keselman also oversees the development of life sciences and health education resources for K-12 students and teachers. Klappentext Meeting Health Information Needs Outside of Healthcare addresses the challenges and ethical dilemmas concerning the delivery of health information to the general public in a variety of non-clinical settings, both in-person and via information technology, in settings from public and academic libraries to online communities and traditional and social media channels. Professionals working in a range of fields, including librarianship, computer science and health information technology, journalism, and health communication can be involved in providing consumer health information, or health information targeting laypeople. This volume clearly examines the properties of health information that make it particularly challenging information to provide in diverse settings. Inhaltsverzeichnis Series Editor About the authors Editors' foreword Acknowledgments Overview1. Designing health information programs to promote the health and well-being of vulnerable populations: the benefits of evidence-based strategic health communication1.1. Introduction1.2. Barriers1.3. Lessons learned: improving health communication for vulnerable populations1.4. Strategies to develop strategic communication1.5. Evaluating health communication1.6. Practice implications2. Health literacy research's growth, challenges, and frontiers2.1. Introduction2.2. Four milestones in health literacy research2.3. Health literacy's evolving definition and conceptual underpinnings2.4. The range and vitality of health literacy research2.5. Health literacy research's current needs and frontiers2.6. Conclusions Libraries3. Medical information for the consumer before the World Wide Web3.1. Introduction: "Closed to the Public?3.2. Background: the beginnings of consumer health information3.3. Libraries3.4. Librarian3.5. The patron3.6. Content3.7. Conclusions4. Ethical health information: Do it well! Do it right! Do no harm!4.1. Introduction4.2. Responsibility for the best possible information service4.3. The right to privacy and responsibility for confidentiality4.4. Providing fair and equitable access4.5. Intellectual property rights and access to information4.6. Advocacy for information access4.7. Providing information versus giving advice4.8. Conflicting values, dilemmas, and tough decisions4.9. Keep learning5. Health information resource provision in the public library setting5.1. Background5.2. Challenges5.3. Case study: embedded consumer health librarians in Delaware5.4. Conclusions6. Who needs a health libra...

List of contents

  • Series Editor
  • About the authors
  • Editors' foreword
  • Acknowledgments
  • Overview
    • 1. Designing health information programs to promote the health and well-being of vulnerable populations: the benefits of evidence-based strategic health communication
      • 1.1. Introduction
      • 1.2. Barriers
      • 1.3. Lessons learned: improving health communication for vulnerable populations
      • 1.4. Strategies to develop strategic communication
      • 1.5. Evaluating health communication
      • 1.6. Practice implications
    • 2. Health literacy research's growth, challenges, and frontiers
      • 2.1. Introduction
      • 2.2. Four milestones in health literacy research
      • 2.3. Health literacy's evolving definition and conceptual underpinnings
      • 2.4. The range and vitality of health literacy research
      • 2.5. Health literacy research's current needs and frontiers
      • 2.6. Conclusions
  • Libraries
    • 3. Medical information for the consumer before the World Wide Web
      • 3.1. Introduction: "Closed to the Public”
      • 3.2. Background: the beginnings of consumer health information
      • 3.3. Libraries
      • 3.4. Librarian
      • 3.5. The patron
      • 3.6. Content
      • 3.7. Conclusions
    • 4. Ethical health information: Do it well! Do it right! Do no harm!
      • 4.1. Introduction
      • 4.2. Responsibility for the best possible information service
      • 4.3. The right to privacy and responsibility for confidentiality
      • 4.4. Providing fair and equitable access
      • 4.5. Intellectual property rights and access to information
      • 4.6. Advocacy for information access
      • 4.7. Providing information versus giving advice
      • 4.8. Conflicting values, dilemmas, and tough decisions
      • 4.9. Keep learning
    • 5. Health information resource provision in the public library setting
      • 5.1. Background
      • 5.2. Challenges
      • 5.3. Case study: embedded consumer health librarians in Delaware
      • 5.4. Conclusions
    • 6. Who needs a health librarian? Ethical reference transactions in the consumer health library
      • 6.1. Introduction
      • 6.2. The reference transaction: asking the right questions, avoiding the wrong answers
      • 6.3. Looking for the answers: symptom-checkers and self-diagnosing
      • 6.4. What did the doctor say? Health literacy and deciphering a whole new language
      • 6.5. When the answers have questions: experimental treatments and integrative medicine
      • 6.6. Conclusions
    • 7. Consumer health information: the community college conundrum
      • 7.1. The community college setting
      • 7.2. Health information needs at the community college
      • 7.3. Issues in health information provision
      • 7.4. Health literacy in the community college setting
      • 7.5. The future for community colleges and health information
      • 7.6. Conclusions
      • Appendix A: Community and Junior College Libraries Section (CJCLS) of the Association of College and Research Libraries
  • Contexts
    • 8. Health information delivery outside the clinic in a developing nation: The Qatar Cancer Society in the State of Qatar
      • 8.1. Introduction and background
      • 8.2. Qatar
      • 8.3. Methods
      • 8.4. Sources of consumer health information in the GCC
      • 8.5. Barriers to health care in Qatar
      • 8.6. The Qatar Cancer Society
      • 8.7. Cancer information delivery outside the clinical setting
      • 8.8. Conclusions
      • Appendix 1: Questionnaire
    • 9. Health information and older adults
      • 9.1. Introduction
      • 9.2. Background
      • 9.3. Settings: where do older adults go for information?
      • 9.4. Health information format considerations
      • 9.5. Format summary
      • 9.6. Health information comprehen

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