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Informationen zum Autor Elizabeth Morrow is Research Associate at the National Nursing Research Unit, Kings College London Dr Annette Boaz is Lecturer in Translational Research at the Division of Health and Social Care Research, King's College, London Sally Brearley is Chair of Health Link, (a not-for-profit organisation aimed at strengthening public influence on health (www.health-link,org.uk), and was former Chair of The Patients Forum (www.thepatientsforum.org.uk) Professor Fiona Mary Ross is Dean of Faculty of Health and Social Care Sciences, Kingston University and St George's, University of London Klappentext This book fills an important niche in the market providing practical expert advice on service user (patients, carers and the public) involvement in nursing and healthcare research. An invaluable guide for anyone working or involved in nursing and healthcare research, this book provides a step-by-step guide to the principles and process of involvement, including understanding the rationale for involvement, designing involvement, working with service users, and evaluating what has been achieved.With illustrations, worked examples and tool sheets throughout, this evidence-based guide uses real life examples from recent research studies in health and social care research, thus relating theory to practice in a meaningful way. The Handbook of Service User Involvement in Nursing & Healthcare Research introduces a wide range of key issues, including:* Why? Why should researchers involve service users?* How? How can researchers and service users work together successfully and productively?* Who? Who chooses to become involved in research? How are issues of representation and diversity addressed?* When? At what stage should service users be involved in the research process? Zusammenfassung Handbook of User Involvement in Nursing and Healthcare Research is an invaluable guide to those working in nursing and healthcare research, helping them understand service users' expectations about involvement. Inhaltsverzeichnis Contributors viii About the authors x Preface xii Structure of the book xv Acknowledgements xviii Part I Preparing 1 1 Perspectives and expectations 3 Approaching service user involvement 4 Political and research contexts of involvement 7 Historical roots and social movements 8 Perspectives of service user involvement 12 What is known about the impact of involvement? 14 Current challenges 15 2 Concepts 18 Service users 19 Involvement 21 Representation 22 Experiential knowledge 24 Empowerment 25 Participation 26 Models of involvement 27 A theoretical framework for approaching service user involvement in research 30 3 Designing involvement 36 Deciding who to involve 37 Building in opportunities for involvement 40 Research methods and approaches to involvement 42 Planning involvement 48 Payments 48 Research ethics and governance 54 4 Working relationships 59 Making connections 60 Working environments 61 Roles and responsibilities 66 Legal and ethical issues 67 Training and support 68 Communication 70 Feedback and reflection 72 Embedding service user involvement 72 Part II Learning 77 5 Patients, clients and carers 79 Patients who are receiving health care 80 People who are very sick 83 People with rare clinical conditions 85 People who find it difficult to access services 85 People who do not have the capacity to consent 87 Carers 89 6 Involvement over the life course 93 Children and their parents 93 School-age children 97 Young p...
