Governance of Genetic Information - Who Decides?

This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information.

List of contents

Introduction Heather Widdows and Caroline Mullen; Section I. Problematising Governance of Genetic Information: 1. The medium and the message: tissue samples, genetic information and data protection legislation Neil C. Manson; 2. Me, myself, I: against narcissism in the governance of genetic information Søren Holm; 3. Decisions, consent and expectations of the individual Caroline Mullen; Section II. Ethical Frameworks of Governance: 4. Constructing communal models of governance: collectives of individuals or distinct ethical loci? Heather Widdows; 5. Rights, responsibility and stewardship: beyond consent Roger Brownsword; 6. Who decides what? Relational ethics, genetics and well-being Sarah Wilson; Section III. Redesigning Governance: 7. Involving publics in biobank governance: moving beyond existing approaches Kathryn G. Hunter and Graeme T. Laurie; 8. Genetic information and public opinion Andrew Edgar; 9. Harmonisation and standardisation in ethics and governance: Conceptual and practical challenges Ruth Chadwick and Heather Strange.

About the author

Dr Heather Widdows is a Senior Lecturer in the Department of Philosophy at the University of Birmingham, where she teaches moral philosophy and bioethics.Dr Caroline Mullen is a research officer at the Centre for European Law and Legal Studies, School of Law, University of Leeds.

Summary

This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring.

Product details

• Authors: Heather (University of Birmingham) Mullen Widdows, Heather Mullen Widdows
• Assisted by: Caroline Mullen (Editor), Mullen Caroline (Editor), Heather Widdows (Editor), Widdows Heather (Editor)
• Publisher: Cambridge University Press ELT
• Languages: English
• Product format: Paperback / Softback
• Released: 05.12.2013
• EAN: 9781107625426
• ISBN: 978-1-107-62542-6
• No. of pages: 248
• Series: Cambridge Law, Medicine and Et; Cambridge Law, Medicine and Et; Cambridge Law, Medicine and Ethics
• Subjects: Social sciences, law, business > Law > Mercantile and commercial law; LAW / Medical Law & Legislation, Ethics & moral philosophy, Bioethics, Medical & healthcare law, Medical ethics and professional conduct, Medical ethics & professional conduct, Medical and healthcare law