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Zusatztext Overall, this is a well researched and thorough book which I think is, in many ways, also applicable to the wider palliative care patient population, not just those with ALS. Informationen zum Autor David Oliver is Medical Director and Consultant Physician in Palliative Medicine at the Wisdom Hospice, Rochester and Honorary Reader at the Centre for Professional Practice at the University of Kent. He is Visiting Professor at the Medical Faculty at the University of Zagreb, Croatia and Adjunct Associate Professor at Curtin University, Perth.He qualified at University College Hospital, London and then trained as a GP. He was Registrar and Senior Registrar at St Christopher's Hospice London and was appointed to his present post in 1984.He has lectured and published widely on neurological palliative care, particularly on the care of people with motor neurone disease, including as principal editor of "Palliative care in ALS - from diagnosis to treatment ". He is chair of the European Association for Palliative Care Taskforce on Neurology and Palliative Care and was Clinical Lead for "End of life care in long term neurological conditions - a framework for implementation ". Klappentext ALS (motor neurone disease) is a progressive disease that can have profound effects on the person, carers and their family. This book is for all health and social care professionals involved in the care of people with ALS. It enables the standard of care and the quality of life of all those involved to be maintained. Zusammenfassung ALS (motor neurone disease) is a progressive disease that can have profound effects on the person, carers and their family. This book is for all health and social care professionals involved in the care of people with ALS. It enables the standard of care and the quality of life of all those involved to be maintained. Inhaltsverzeichnis 1: Chris Shaw, Annika Quinn and Emma Scotter: Amyotrophic lateral sclerosis/motor neuron disease 2: David Oliver: Palliative care 3: Richard Sloan, Pongratz and Gian Domenico Borasio: Communication: Breaking the news 4: Wendy Johnston: Decision making 5: Gian Domenico Borasio and Raymond Voltz: Advance directives 6: Deborah Gelinas: Control of symptoms: Dyspnoea 7: Edith Wagner-Sonntag: Control of symptoms: Dysphagia 8: Laura H. Goldstein: Control of symptoms: Cognitive dysfunction 9: David Oliver, Gian Domenico Borasio, and Wendy Johnston: Pain, psychological distress and other symptoms 10: Sue Smith and Maria Wasner: Psychosocial care 11: Robert Lambert: Spiritual care 12: Ulrike Hammerbeck and Emily Jay: Multidisciplinary care: Physiotherapy 13: Chris Kingsnorth and Sarah Lavender: Multidisciplinary care: Occupational therapy 14: Amanda Scott and Maryanne McPhee: Interdisciplinary care: Speech and language therapy 15: Dallas Forshew: Multidisciplinary care: Nursing care 16: Gregory T. Carter, Sunil Kumar Aggarwa, Weiss, and Richard S. Bedlack: Complementary and alternative medicine 17: Leo McCluskey, Laura Elman, and Wendy Johnston: Ethical issues 18: Nigel Sykes: End of Life Care in Motor Neurone Disease 19: Joy Kelly: Bereavement 20: Marika Warren, Michelle Warren, and Douglas Warren: No time to waste: a family's journey from diagnosis to bereavement Appendix: List of useful websites for ALS patients ...
