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Despite advances in detection and treatment, cancer remains a source of pain and distress to patients and of complex challenges to the loved ones caring for them. The trend toward shorter hospital stays in particular has increased the physical, psychological, and financial burden on caregivers, often leading to adverse effects on patients.
Cancer Caregiving in the United States illuminates these complex concerns with authoritative detail. This wide-ranging volume provides a comprehensive survey of cancer-related issues, including those affecting the care triad (patients-family members- professionals) and quality of care as well as the numerous physical, emotional, and financial challenges that caregivers may need to confront. Sources of caregiver difficulty at each stage of the disease, from diagnosis to end of life, are explored. Each chapter analyzes its topic in terms of practice, research, education, and policy, providing a wealth of literature reviews, assessment and care models, interventions, and recommendations for future study and practice.
Coverage includes:
- Caregiving issues for cancer patients with long-term, short-term, and intermittent needs.
- Family caregivers as members of the treatment team.
- The impact of health disparities on caregivers.
- Cancer care policy and advocacy.
- End-of-life issues for cancer caregivers.
- Legal, financial, and ethical issues.
Cancer Caregiving in the United States is a core reference for researchers, professionals/scientist-practitioners, and graduate students in such caregiving fields as clinical psychology, social work, nursing, public health and medicine, social policy, and educational policy.
List of contents
1. Caring for a Loved One with Cancer: Professional and Family Issues.- Section I: Issues Affecting the Care Triad.- 2. Diagnostic Issues: Family Dynamics & Caring for an Individual with Cancer.- 3. The Emotional Responses of Family Caregivers: Living with the Cancer and Helping Families Cope.- 4. The Impact of Health Disparities on Cancer Caregivers.- 5. Education, Training, and Support Programs for Caregivers of Individuals with Cancer.- 6. What Professional Caregivers in Health Care Can Do: Family Caregivers as Members of the Treatment Team.- Section II: Issues in Providing Direct Care.- 7. Issues in Providing Developmentally Appropriate Caregiving for Cancer Patients with Short-term/Intermittent Care Needs.- 8. Issues in Caregiving for Cancer Patients with Long-term Care Needs.- 9. End-of-Life Issues for Caregivers of Individuals with Cancer.- 10. Advances in Cancer Care Impacting Familial Caregiving.- Section III: Cross-cutting Issues Impacting Caregivers and Caregiving.- 11. Faith-based Issues in Caring for a Loved One with Cancer.- 12. Economic Issues in Cancer Care.- 13. Legal Issues in Caregiving for Individuals with Cancer.- 14. Cancer Care Policy and Advocacy: National and State Initiatives.- 15. Ethical Issues in Caregiving for Individuals with Cancer.- Section IV: Conclusions.- 16. Caregiving and Cancer: Changed Lives and the Future of Cancer Care.
About the author
Ronda C. Talley, PhD, MPH, serves as Health Scientist on the Disability and Health Team in CDC's National Center on Birth Defects and Developmental Disabilities. She carries the portfolio on caregiving across the life span, including mental health and disability issues for children and youth. Dr. Talley is the immediate past Executive Director and Professor at the Rosalynn Carter Institute for Caregiving, which is located at Georgia Southwestern State University in Americus, Georgia. The RCI opened a Washington, DC, office in 2003. Dr. Talley led the RCI s National Quality Caregiving Coalition. While at the RCI, Dr. Talley conceptualized and developed the initial stages of the Caregiving book series, working with all authors and editors. Former Assistant Executive Director of Education and Director of Policy and Advocacy in the Schools for the American Psychological Association, Dr. Talley was Founding Director of the APA s Center for Psychology in Schools and Education. In her position at APA, Dr. Talley was responsible for directing Association programs that bring the knowledge and methods of psychology to bear on national issues of social reform related to schools and education, including educational research, practices, and policies. Dr. Talley is also a Fellow of APA's Division of School Psychology and author of many publications in psychology.During 1994-95, Dr. Talley was selected as an Education Policy Fellow by the Washington, DC-based Institute for Educational Leadership. As the recipient of the 1996 Outstanding Alumni Award from the Indiana University School of Education, Dr. Talley was described as 'the voice of school psychology at the national level'. She is the 1998 recipient of the Jack Bardon Distinguished Service Award from the APA Division of School Psychology. With more than 30 years of service as a special education teacher, school psychologist, school administrator, university professor, organizational advocate, lobbyist, and private consultant, Dr. Talley is a frequent writer and speaker on caregiving issues and on public policy and practice issues in health, education, and human services reform. She specializes in life span caregiving issues and organizational planning and development. Dr. Talley has served as editor of four published volumes.
Summary
Despite advances in detection and treatment, cancer remains a source of pain and distress to patients and of complex challenges to the loved ones caring for them. The trend toward shorter hospital stays in particular has increased the physical, psychological, and financial burden on caregivers, often leading to adverse effects on patients.
Cancer Caregiving in the United States illuminates these complex concerns with authoritative detail. This wide-ranging volume provides a comprehensive survey of cancer-related issues, including those affecting the care triad (patients-family members- professionals) and quality of care as well as the numerous physical, emotional, and financial challenges that caregivers may need to confront. Sources of caregiver difficulty at each stage of the disease, from diagnosis to end of life, are explored. Each chapter analyzes its topic in terms of practice, research, education, and policy, providing a wealth of literature reviews, assessment and care models, interventions, and recommendations for future study and practice.
Coverage includes:
- Caregiving issues for cancer patients with long-term, short-term, and intermittent needs.
- Family caregivers as members of the treatment team.
- The impact of health disparities on caregivers.
- Cancer care policy and advocacy.
- End-of-life issues for cancer caregivers.
- Legal, financial, and ethical issues.
Cancer Caregiving in the United States is a core reference for researchers, professionals/scientist-practitioners, and graduate students in such caregiving fields as clinical psychology, social work, nursing, public health and medicine, social policy, and educational policy.
Additional text
From the reviews:
“This comprehensive guide to cancer caregiving in the United States covers legal, financial, and ethical issues as well as the impact cancer has on patients and their caregiving team. The purpose is to highlight the role that caregivers play in a cancer patient’s diagnosis, treatment, and recovery. … The book highlights one theory about managing cancer crisis by developing a therapeutic alliance with the entire healthcare team and family. … The book also has many suggestions for future needs and directions for new research.” (Andrea F. Cox, Doody’s Review Service, July, 2012)
Report
From the reviews:
"This comprehensive guide to cancer caregiving in the United States covers legal, financial, and ethical issues as well as the impact cancer has on patients and their caregiving team. The purpose is to highlight the role that caregivers play in a cancer patient's diagnosis, treatment, and recovery. ... The book highlights one theory about managing cancer crisis by developing a therapeutic alliance with the entire healthcare team and family. ... The book also has many suggestions for future needs and directions for new research." (Andrea F. Cox, Doody's Review Service, July, 2012)
