Read more
New developments in science and technology have resulted in shifting ethical challenges in many areas including in genomics research. This book enables those who are involved in genomics research, whether as researcher, participant or policy maker, to understand the ethical issues currently developing in this field and to participate actively in these important debates. A clear account is given of how science and technology are outstripping the capacity of previous ethical regulations to cope with current issues, together with practical illustrations of possible ways forward. Key ethical ideas are presented, drawing on the history of research regulation and on an account of the particular challenges arising in the field of genomics. The book uses a grounded, practical approach to explaining ethical concepts and issues which is geared to enhancing interdisciplinary dialogue. Its broad approach to ethical issues includes relevant considerations from social psychology and there is a particular emphasis on understanding the problems of ethical regulations and practice in the institutional and social context of research. A glossary and numerous text boxes explaining relevant terms and key ideas help to make the work an invaluable resource for both beginners and experts in the field.
List of contents
The 'ethics job'.- Why ethics in genetics?- Why ethics in research?- The case of genomics research.- What ethics is, and how we are going to proceed.-Starting analysis in ethics: a practical guide.- Research ethics and challenges from genomics: an overview of the issues.- Autonomy and its limits: the view from genetics.- The social and institutional context of ethics.- Respect for persons in research and in genetics.- Responsibilities of researchers in genomics.- Data sharing in genomics.- Glossary.- Abbreviations.- Index of text boxes.- Subject index.
Summary
New developments in science and technology have resulted in shifting ethical challenges in many areas including in genomics research. This book enables those who are involved in genomics research, whether as researcher, participant or policy maker, to understand the ethical issues currently developing in this field and to participate actively in these important debates. A clear account is given of how science and technology are outstripping the capacity of previous ethical regulations to cope with current issues, together with practical illustrations of possible ways forward. Key ethical ideas are presented, drawing on the history of research regulation and on an account of the particular challenges arising in the field of genomics. The book uses a grounded, practical approach to explaining ethical concepts and issues which is geared to enhancing interdisciplinary dialogue. Its broad approach to ethical issues includes relevant considerations from social psychology and there is a particular emphasis on understanding the problems of ethical regulations and practice in the institutional and social context of research. A glossary and numerous text boxes explaining relevant terms and key ideas help to make the work an invaluable resource for both beginners and experts in the field.
Additional text
“Paul Boddington’s book, Ethical Challenges in Genomics Research, provides a useful and informative introduction to a wide variety of ethical issues related to genomic research involving human participants … . Ethical Challenges in Genomics Research also includes insights and discussions of interest to experts and policymakers. I recommended it highly.” (David B. Resnik, Monash Bioethics Review, Vol. 32, 2014)
Report
"Paul Boddington's book, Ethical Challenges in Genomics Research, provides a useful and informative introduction to a wide variety of ethical issues related to genomic research involving human participants ... . Ethical Challenges in Genomics Research also includes insights and discussions of interest to experts and policymakers. I recommended it highly." (David B. Resnik, Monash Bioethics Review, Vol. 32, 2014)
