Read more
Palliative care for the critically ill and terminally ill To give a patient 'life' is the primary goal of caring for individuals with severe, life-limiting illnesses. Physiotherapy within the realms of palliative care is an exceptional means of preserving and improving quality of life and independence. This book provides a comprehensive picture of the strategies and visions of palliative physiotherapy. Perfectly structured with a sound scientific background, yet highly practical, it explains the objectives and potential uses for physiotherapy at end of life: common combinations of symptoms such as dementia, weakness, anxiety, pain, breathlessness and oedema, but also motivation, are given a fresh perspective from the angle of palliative care. Numerous case studies illustrate how useful physiotherapy can be in palliative care and how it can be applied to greatest effect - from the early stages of a disease to the terminal phase. Beyond medical 'facts', all the aspects so important to palliative care - whether psychosocial, communicative, ethical, spiritual or cultural - are addressed in detail, including supervision as a means of self-care for the therapist. This is a book for all those (not only in hospices and palliative care units) faced with caring for critically ill and terminally ill patients - essential reading for a professional, considered approach.
List of contents
1 Approaching the topic of physiotherapy in palliative care
1.1 Definition of palliative care and end of life care
1.2 Who is the palliative care physiotherapist?
1.3 From symptom control to rehabilitation: Physiotherapy approaches to end of life care
1.4 The right time for physiotherapy: Is there a 'too late' or a 'too early'?
1.5 Physiotherapy at end of life: Patients' perspectives
1.6 Physiotherapy Students in Palliative Care
2 Physiotherapy and medical aspects
2.1 Clinical reasoning
2.2 Pain
2.3 Respiratory symptoms: dyspnoea/breathlessness from airway obstruction and impaired oxygen capacity
2.4 Breathlessness and fear
2.5 Lymphoedema
2.6 Fatigue and weakness
2.7 Anxiety in the context of palliative physiotherapy
2.8 Dementia
2.9 Physiotherapy in paediatric palliative care
2.10 Physiotherapy in the terminal phase
3 Psycho-social aspects
3.1 Communication in palliative care: an introduction
3.2 'Of sad lions that roar' and handling strong emotions
4 Ethical, spiritual and cultural aspects
4.1 Ethics and ethical reasoning in palliative physiotherapy
4.2 The interface between function and meaning
4.3 With respect and openness: intercultural competence in palliative physiotherapy5 "Self care" for Physiotherapists
5.1"How am I really feeling?" - questions and suggestions for (self-)supervision 5.2 Closeness and distance, to touch and be touched; the physiotherapeutic dynamic
About the author
Rainer Simader ist Physiotherapeut und Lektor, ebenso Lehrer für Physiotherapie (Fachbereich Palliative Care) in der Physiotherapie Grundausbildung und bei Masterstudiengängen. Er ist Leiter der österreichischen Fachgruppe Palliative Care und Hospizwesen des österreichischen Physiotherapieverbandes und Gründungsmitglied der Task Force Physiotherapy der EAPC. Ehemaliger Senior Physiotherapist St. Christophers Hospice London. Rainer Simader organisiert und ggf. hält regelmäßig Kurse für Physiotherapeuten und interdisziplinäre Teams zum Bereich Palliative Care / End of Life Care. (Jährlich ca. 100 TeilnehmerInnen) Zahlreiche Vorträge bei nationalen und internationalen Konferenzen (z.B. Österreich, Deutschland, Portugal, England). Autor des Basiscurriculums Physiotherapie in Palliative Care und im Hospizwesen. Er ist Autor vieler Artikel und hält viele Kontakte zu nationalen und internationalen Vertretern der Palliativ- und Hospizwelt.
Peter Nieland ist Leiter der Physiotherapie des Malteser Hospitals Bonn / Rhein-Sieg, hat die erste Physiotherapie in einer Palliativstation gemeinsam mit dem damaligen Präsidenten des deutschen Palliativgesellschaft (Prof. E. Klaschik) aufgebaut. Er ist Leiter des Arbeitskreises Physiotherapie in Palliativ Care der deutschen Gesellschaft für Palliativmedizin und Träger des Ehrenpreises des ZVK (Zentralverband deutscher Physiotherapeuten) Stein der Weisen für seine Tätigkeit um die Physiotherapie in Palliative Care. Peter Nieland ist Autor und Co Autor zahlreicher Artikel und Gründungsmitglied der europäischen Taskforce Physiotherapy der European Association for Palliative Care (EAPC). Er hält pro Jahr ca. 60 Weiterbildungen zum Thema (ca. 500 TeilnehmerInnen) und ist Referent bei nationalen und internationalen Konferenzen (z.B. Neuseeland, Österreich, England, Amerika). Der Autor hat sehr gute berufspolitische Kontakte im Bereich Palliative Care. Beirat im ZVK.
Summary
Palliative care for the critically ill and terminally ill
To give a patient 'life' is the primary goal of caring for individuals with severe, life-limiting illnesses. Physiotherapy within the realms of palliative care is an exceptional means of preserving and improving quality of life and independence.
This book provides a comprehensive picture of the strategies and visions of palliative physiotherapy. Perfectly structured with a sound scientific background, yet highly practical, it explains the objectives and potential uses for physiotherapy at end of life: common combinations of symptoms such as dementia, weakness, anxiety, pain, breathlessness and oedema, but also motivation, are given a fresh perspective from the angle of palliative care. Numerous case studies illustrate how useful physiotherapy can be in palliative care and how it can be applied to greatest effect – from the early stages of a disease to the terminal phase.
Beyond medical 'facts', all the aspects so important to palliative care – whether psychosocial, communicative, ethical, spiritual or cultural – are addressed in detail, including supervision as a means of self-care for the therapist.
This is a book for all those (not only in hospices and palliative care units) faced with caring for critically ill and terminally ill patients – essential reading for a professional, considered approach.
