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Caring for people with disabilities often becomes an all-encompassing responsibility for one or more family members. To manage the multifaceted demands, caregivers must possess strong multitasking skills, including the ability to assist with daily life tasks; provide emotional support; help with financial affairs; mediate and advocate with health care providers. Maintaining balance within their own lives can become incredibly challenging for caregivers. More often than not, providing care for family members or loved ones occurs at the expense of the caregivers' well-being. And for caregivers who themselves have disabilities, it further complicates matters.
Multiple Dimensions of Caregiving and Disability addresses concerns that have been long familiar to the caregiver population and examines the current state of family care for individuals with disabilities. With a lifespan perspective, this concise reference reviews the literature on specific problems of caregivers and explores which care strategies are effective, promising, or lacking in available resources and support interventions. Contributors also explore the more fluid and subjective aspects of caregiving, such as feelings, spirituality, and family roles. Suggestions for future policy improvements, particularly within the public health sector, are discussed as well.
Topics covered include:
- Family dynamics and caregiving for people with disabilities.
- Parent caregiving of children with disabilities.
- Race, ethnicity, socioeconomic status, and caregiving.
- Educational, training, and support programs for caregivers.
- Emerging technologies to aid caregivers.
- Developing partnerships between caregivers and health care providers.
Multiple Dimensions of Caregiving and Disability is a must-have resource for researchers, scientist-practitioners, policy makers, and graduate students across such disciplines as clinicalpsychology, nursing, social work, public health, medicine, and social and education policy.
List of contents
1. Introduction: Multiple Dimensions of Caregiving and Disability.- 2. Family Dynamics and Caregiving for People with Disabilities.- 3. Feelings of Family Caregivers.- 4. Education, Training, and Support Programs for Caregivers of Individuals with Disabilities.- 5. Parent Caregivers of Children with Disabilities.- 6. Neither Prepared Nor Rehearsed: The Role of Public Health in Disability and Caregiving.- 7. Race/Ethnicity, Culture, and Socioeconomic Status and Caregiving of Persons with Disabilities.- 8. Faith and Spirituality: Supporting Caregivers of Individuals with Disabilities.- 9. Family Caregivers and Health Care Providers: Developing Partnerships for a Continuum of Care and Support.- 10. Legal Issues Related to Caregiving for an Individual with Disabilities.- 11. Long Term Care Planning For Individuals with Developmental Disabilities.- 12. Emerging Technologies for Caregivers of a Person with a Disability.- 13. Multiple Dimensions of Caregiving and Disability: Supporting Those Who Care.
About the author
Ronda C. Talley, PhD, MPH, serves as Health Scientist on the Disability and Health Team in CDC's National Center on Birth Defects and Developmental Disabilities. She carries the portfolio on caregiving across the life span, including mental health and disability issues for children and youth. Dr. Talley is the immediate past Executive Director and Professor at the Rosalynn Carter Institute for Caregiving, which is located at Georgia Southwestern State University in Americus, Georgia. The RCI opened a Washington, DC, office in 2003. Dr. Talley led the RCI s National Quality Caregiving Coalition. While at the RCI, Dr. Talley conceptualized and developed the initial stages of the Caregiving book series, working with all authors and editors. Former Assistant Executive Director of Education and Director of Policy and Advocacy in the Schools for the American Psychological Association, Dr. Talley was Founding Director of the APA s Center for Psychology in Schools and Education. In her position at APA, Dr. Talley was responsible for directing Association programs that bring the knowledge and methods of psychology to bear on national issues of social reform related to schools and education, including educational research, practices, and policies. Dr. Talley is also a Fellow of APA's Division of School Psychology and author of many publications in psychology.During 1994-95, Dr. Talley was selected as an Education Policy Fellow by the Washington, DC-based Institute for Educational Leadership. As the recipient of the 1996 Outstanding Alumni Award from the Indiana University School of Education, Dr. Talley was described as 'the voice of school psychology at the national level'. She is the 1998 recipient of the Jack Bardon Distinguished Service Award from the APA Division of School Psychology. With more than 30 years of service as a special education teacher, school psychologist, school administrator, university professor, organizational advocate, lobbyist, and private consultant, Dr. Talley is a frequent writer and speaker on caregiving issues and on public policy and practice issues in health, education, and human services reform. She specializes in life span caregiving issues and organizational planning and development. Dr. Talley has served as editor of four published volumes.
Summary
Caring for people with disabilities often becomes an all-encompassing responsibility for one or more family members. To manage the multifaceted demands, caregivers must possess strong multitasking skills, including the ability to assist with daily life tasks; provide emotional support; help with financial affairs; mediate and advocate with health care providers. Maintaining balance within their own lives can become incredibly challenging for caregivers. More often than not, providing care for family members or loved ones occurs at the expense of the caregivers’ well-being. And for caregivers who themselves have disabilities, it further complicates matters.
Multiple Dimensions of Caregiving and Disability addresses concerns that have been long familiar to the caregiver population and examines the current state of family care for individuals with disabilities. With a lifespan perspective, this concise reference reviews the literature on specific problems of caregivers and explores which care strategies are effective, promising, or lacking in available resources and support interventions. Contributors also explore the more fluid and subjective aspects of caregiving, such as feelings, spirituality, and family roles. Suggestions for future policy improvements, particularly within the public health sector, are discussed as well.
Topics covered include:
• Family dynamics and caregiving for people with disabilities.
• Parent caregiving of children with disabilities.
• Race, ethnicity, socioeconomic status, and caregiving.
• Educational, training, and support programs for caregivers.
• Emerging technologies to aid caregivers.
• Developing partnerships between caregivers and health care providers.
Multiple Dimensions of Caregiving and Disability is a must-have resource for researchers, scientist-practitioners, policy makers, and graduate students across such disciplines as clinicalpsychology, nursing, social work, public health, medicine, and social and education policy.
