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This book provides the reader with a theoretical and practical understanding of two health care delivery models: the patient/child centred care and family-centred care. Both are fundamental to caring for children in healthcare organizations. The authors address their application in a variety of paediatric healthcare contexts, as well as an understanding of legal and ethical issues they raise. Each model is increasingly pursued as a vehicle for guiding the delivery of health care in the best interests of children. Such models of health care delivery shape health care policies, programs, facility design, resource allocation decisions and day-to-day interactions among patients, families, physicians and other health care professionals. To maximize the health and ethical benefits these models offer, there must be shared understanding of what the models entail, as well as the ethical and legal synergies and tensions they can create. This book is a valuable resource for paediatricians, nurses, trainees, graduate students, practitioners of ethics and health policy.
Inhaltsverzeichnis
Preface.- Acknowledgements.- Notes on Contributors.- Chapter 1: Introduction.- Part I: Introduction to Patient and Family-Centred Care.- Chapter 2: Paediatric Patient-Centred Care: Evidence and Evolution; David B. Nicholas, Krista Keiltyand Karima Karmali.- Chapter 3: A Canadian Perspective on a Child's Consent to Research Within a Context of Family-Centred Care: From Incompatibility to Synergy; Linda Sheahan, Michael Da Silva, Christine Czoli and Randi Zlotnik Shaul.- Chapter 4: Resource Allocation in Paediatric Patient and Family-Centred Care; Jennifer L. Gibson.- Part II: Legal, Ethical and Cultural Considerations.- Chapter 5: Culture, Religion and Family-Centred Care: Rani H. Srivastava.- Chapter 6: Ethical and Legal Issues in Patient and Family-Centred Care: Canadian First Nations, Métis and Inuit People; Julija Kelecevic.- Chapter 7: Accounting for the Family in Law: An Impartial but not Impersonal Point of View; Lee A. Chapman.- Chapter 8: Legal Considerations in Paediatric Patient and Family-Centred Healthcare; Joan M. Gilmour.- Part III: Implementation and Lived Experience.- Chapter 9: Paediatric Patient-Centred Care at SickKids: Advancing Child & Family-Centred Care; Krista Keilty, David B. Nicholas, Karen Sappleton and Karima Karmali.- Chapter 10: The Effect of Patient and Family-Centred Care (PFCC) Delivery Model on Paediatrics at the Thunder Bay Regional Health Sciences Centre; Bonnie Nicholas.- Chapter 11: Creating Partnerships for Life: One Family's Story of Paediatric Patient and Family-Centred Paediatric Care; Janis Purdy.- Chapter 12: Supporting the Developing Autonomy of Youth Patients: Reflections on the Role ofHealthcare Providers; Christy Simpson.- Part IV: In Context.- Chapter 13: Participation in Paediatric Research Studies; Nancy Walton.- Chapter 14: Clinical Genetics Practice: Integrating Paediatric Patient and Family-Centred Care; Cheryl Shuman and Riyana Babul-Hirji.- Chapter 15: End-of-Life Decision-Making in the Neonatal Intensive Care Unit: Serving the Best Interests of the Newborn Within a Patient and Family-Centred Care Framework ; Jonathan Hellman.- Chapter 16: Legal and Ethical Issues in Child-and Family-Centred Care:Transplantation; Rebecca A. Greenberg, Michael Campbell and Linda Wright.- Chapter 17: Patient and Family-Centred Care: Critical Partnerships When Treating Adolescent Anorexia Nervosa; Lori d'Agincourt-Canning, Lucinda Kunkel and Karen Dixon.- Chapter 18: Lost in Transition: Legal and Ethical Approaches When Applying Patient- and Family-Centred Care to Adolescents With Disabilities; Maria L.Z. McDonald and Lucie Wade.- Chapter 19: Ethical Conflicts That may Arise When Caring for Dying Children; Christine Newman, Adam Rapoport and Gurjit Sangha.
Zusammenfassung
This book provides the reader with a theoretical and practical understanding of two health care delivery models: the patient/child centred care and family-centred care. Both are fundamental to caring for children in healthcare organizations. The authors address their application in a variety of paediatric healthcare contexts, as well as an understanding of legal and ethical issues they raise. Each model is increasingly pursued as a vehicle for guiding the delivery of health care in the best interests of children. Such models of health care delivery shape health care policies, programs, facility design, resource allocation decisions and day-to-day interactions among patients, families, physicians and other health care professionals. To maximize the health and ethical benefits these models offer, there must be shared understanding of what the models entail, as well as the ethical and legal synergies and tensions they can create. This book is a valuable resource for paediatricians, nurses, trainees, graduate students, practitioners of ethics and health policy.
